Millgård Moa, Feragen Kristin B, Ullmann Miller Jeanette, Arfa Shahrzad, Williamson Heidi, Kling Johanna
Centre for Rare Disorders, Oslo University Hospital, Oslo, Norway.
Centre for Appearance Research, University of the West of England, Bristol, UK.
Digit Health. 2022 Dec 25;8:20552076221147110. doi: 10.1177/20552076221147110. eCollection 2022 Jan-Dec.
A visible difference in appearance caused by a congenital or acquired condition can negatively affect adolescents' psychosocial well-being. Young Person's Face IT (YPF) is an online intervention based on cognitive behavioural therapy and social skills training, developed to help adolescents who struggle with adjusting to a visible difference. The objective of the present study was to explore adolescents' and parents' perceptions of the intervention's relevance and usefulness in supporting young people with appearance-related psychosocial concerns.
Participants were adolescents ( = 76, aged 11-18) and parents ( = 15), recruited in a larger randomised controlled trial aiming at evaluating YPF. This qualitative study with descriptive data includes adolescents' ratings on YPF's usefulness, and interview data from adolescents and parents on their experiences with YPF. The interviews were analysed using a thematic approach.
Results indicated that YPF was experienced as useful and relevant. Interviews showed that adolescents felt validated through the programme's content, discovered that other young people had similar experiences and felt that YPF could contribute to changing self-perceptions for the better. However, results could not confirm whether perceived usefulness led to the development and use of new social skills in real-life situations.
This study offers new perspectives on the relevance and usefulness of YPF in supporting adolescents with appearance-related psychosocial concerns. Findings suggest that updates and modifications are required so that YPF stays relevant and useful for adolescents in need of support.
NCT03165331.
由先天性或后天性疾病导致的外貌明显差异会对青少年的心理社会幸福感产生负面影响。青少年面部干预疗法（YPF）是一种基于认知行为疗法和社交技能训练的在线干预措施，旨在帮助那些难以适应外貌差异的青少年。本研究的目的是探讨青少年及其父母对该干预措施在支持有外貌相关心理社会问题的年轻人方面的相关性和有用性的看法。
参与者为青少年（n = 76，年龄11 - 18岁）和父母（n = 15），他们是在一项旨在评估YPF的大型随机对照试验中招募的。这项具有描述性数据的定性研究包括青少年对YPF有用性的评分，以及青少年和父母关于他们使用YPF经历的访谈数据。访谈采用主题分析法进行分析。
结果表明，青少年面部干预疗法被认为是有用且相关的。访谈显示，青少年通过该项目的内容感到被认可，发现其他年轻人有类似经历，并认为青少年面部干预疗法有助于改善自我认知。然而，结果无法证实感知到的有用性是否会导致在现实生活中发展和使用新的社交技能。
本研究为青少年面部干预疗法在支持有外貌相关心理社会问题的青少年方面提供了关于相关性和有用性的新视角。研究结果表明需要进行更新和修改，以便青少年面部干预疗法对需要支持的青少年保持相关性和有用性。
NCT03165331。
