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“一切都关乎计算——但没有确定的结果”——孩子被诊断为糖尿病后的第一个月里父母的适应与应对

"It's All about Calculations-But There Are No Definite Results"-Parental Adaptation and Coping during the First Month following Their Child's Diabetes Diagnosis.

作者信息

Jespersen Louise Norman, Mikkelsen Kristine Zoega, Grabowski Dan

机构信息

Department of Health Promotion Research, Diabetes Management, Copenhagen University Hospital, Steno Diabetes Center Copenhagen, Borgmester Ib Juuls Vej 83, 2730 Herlev, Denmark.

出版信息

Healthcare (Basel). 2023 Jan 16;11(2):280. doi: 10.3390/healthcare11020280.

Abstract

Diabetes-related habits established during the first few years after diagnosis are difficult to change. Therefore, the initial period after a child has been diagnosed with diabetes holds a unique potential for early interventions to adjust adverse patterns of diabetes self-management before they become firmly established. Family functioning is strongly related to glycemic levels, and attending to parents' needs at the time of diagnosis could therefore reduce psychological distress and improve glycemic levels in their children. This study aims to investigate parental adaptation to and coping with their child's diabetes diagnosis during the first month post-diagnosis. Twenty interviews with parents of children (0-18 years) with newly diagnosed type 1 diabetes were conducted and analyzed using systematic text condensation. Four themes were identified: (1) Removal of the safety net, when families experience that they are now on their own; (2) Hit by the realities, when parents realize the impact of living with diabetes; (3) Hang in there, when families mobilize resources to get them through a tough period; and (4) Toward a new normal, when parents begin to reestablish their life with diabetes in mind. This study generated unique insights into early parental adaptation and coping after their child was diagnosed with diabetes.

摘要

糖尿病诊断后的头几年所形成的与糖尿病相关的习惯很难改变。因此,儿童被诊断出患有糖尿病后的最初阶段具有独特的潜力,可进行早期干预,在不良的糖尿病自我管理模式牢固确立之前对其加以调整。家庭功能与血糖水平密切相关,因此在诊断时关注父母的需求可以减轻他们的心理困扰,并改善孩子的血糖水平。本研究旨在调查父母在孩子被诊断出糖尿病后的第一个月内对这一情况的适应和应对情况。对20名0至18岁新诊断出1型糖尿病儿童的家长进行了访谈,并采用系统文本浓缩法进行分析。确定了四个主题:(1)安全网的撤除,即家庭感到现在只能靠自己;(2)直面现实,即父母意识到与糖尿病一起生活的影响;(3)坚持下去,即家庭调动资源以度过艰难时期;(4)走向新常态,即父母开始在考虑糖尿病的情况下重新建立生活。本研究对孩子被诊断出糖尿病后父母的早期适应和应对情况产生了独特的见解。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6e36/9859391/019d9f98ffe8/healthcare-11-00280-g001.jpg

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