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[移动健康技术、社会正义与基于人群的脆弱性:以2型糖尿病为例,从公共卫生伦理视角看移动健康]

[Mobile health technologies, social justice and population-based vulnerabilities : A public health ethics perspective on mHealth using the example of type 2 diabetes mellitus].

作者信息

Jansky Bianca, Machleid Felix, Wild Verina

机构信息

Medizinische Fakultät, Ethik der Medizin, Universität Augsburg, Universitätsstr. 2, 86159, Augsburg, Deutschland.

Institut für Soziologie, Ludwig-Maximilians-Universität, München, Deutschland.

出版信息

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2023 Feb;66(2):168-175. doi: 10.1007/s00103-022-03650-8. Epub 2023 Jan 25.

DOI:10.1007/s00103-022-03650-8
PMID:36695833
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9892162/
Abstract

Mobile health technologies (mHealth) promote the trend towards personal responsibility and self-management. By using the example of type 2 diabetes mellitus (T2DM), the article aims to deepen the discussion on mHealth, personal responsibility and justice-which has so far only been rudimentary-from a public health ethical perspective. It shows that in the field of T2DM, mHealth can on the one hand improve social health justice, but on the other hand can also exacerbate social health injustices. From a justice-focused, public health ethical perspective on T2DM mHealth, it is necessary to better understand whether and how vulnerable population groups are considered in mHealth development and implementation, how these groups experience the use of the technology, what social-epidemiological impacts the increasing use of mHealth can have, which health inequalities in the area of T2DM are unfair, to what extent personal responsibility should be placed in the hands of the users, and where the limits of personal responsibility lie. Considering social diversity and the social determinants of health is an ongoing process and must permeate all phases of mHealth development and implementation.

摘要

移动健康技术(mHealth)推动了个人责任和自我管理的趋势。本文以2型糖尿病(T2DM)为例,旨在从公共卫生伦理的角度,深化对mHealth、个人责任和正义的讨论——迄今为止,这方面的讨论还很初步。文章表明,在T2DM领域,mHealth一方面可以改善社会健康公平,但另一方面也可能加剧社会健康不公平。从以正义为重点的公共卫生伦理视角审视T2DM的mHealth,有必要更好地理解在mHealth的开发和实施过程中,弱势群体是否以及如何得到考虑,这些群体在使用该技术时有何体验,mHealth使用的增加可能产生哪些社会流行病学影响,T2DM领域的哪些健康不平等是不公平的,个人责任应在多大程度上由用户承担,以及个人责任的界限在哪里。考虑社会多样性和健康的社会决定因素是一个持续的过程,必须贯穿于mHealth开发和实施的各个阶段。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3a4d/9892162/a4ad3ad211ce/103_2022_3650_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3a4d/9892162/a4ad3ad211ce/103_2022_3650_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3a4d/9892162/a4ad3ad211ce/103_2022_3650_Fig1_HTML.jpg

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本文引用的文献

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Critical user-configurations in mHealth design: How mHealth-app design practices come to bias design against chronically ill children and young people as mHealth users.移动健康设计中的关键用户配置:移动健康应用程序的设计实践如何导致针对慢性病儿童和青少年这一移动健康用户群体的设计偏见。
Digit Health. 2022 Jun 15;8:20552076221109531. doi: 10.1177/20552076221109531. eCollection 2022 Jan-Dec.
2
Young-onset type 2 diabetes: A neglected group requiring urgent attention.青年发病型2型糖尿病:一个急需关注的被忽视群体。
Diabet Med. 2022 Sep;39(9):e14903. doi: 10.1111/dme.14903. Epub 2022 Jun 30.
3
Applying the Digital Health Social Justice Guide.
应用《数字健康社会正义指南》。
Front Digit Health. 2022 Feb 28;4:807886. doi: 10.3389/fdgth.2022.807886. eCollection 2022.
4
2022 National Standards for Diabetes Self-Management Education and Support.《2022年糖尿病自我管理教育与支持国家标准》
Sci Diabetes Self Manag Care. 2022 Feb;48(1):44-59. doi: 10.1177/26350106211072203. Epub 2022 Jan 20.
5
Digitally supported public health interventions through the lens of structural injustice: The case of mobile apps responding to violence against women and girls.从结构性不公正的角度看数字支持的公共卫生干预措施:以应对暴力侵害妇女和女孩行为的移动应用程序为例。
Bioethics. 2022 Jan;36(1):71-76. doi: 10.1111/bioe.12965. Epub 2021 Oct 20.
6
Evaluating the Potential Use of Smartphone Apps for Diabetes Self-Management in an Underserved Population: A Qualitative Approach.评估智能手机应用在服务不足人群中用于糖尿病自我管理的潜力:一种定性方法。
Int J Environ Res Public Health. 2021 Sep 20;18(18):9886. doi: 10.3390/ijerph18189886.
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Racial Bias in Pulse Oximetry Measurement.脉搏血氧饱和度测量中的种族偏见。
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In-Person and Technology-Mediated Peer Support in Diabetes Care: A Systematic Review of Reviews and Gap Analysis.糖尿病护理中的面对面和技术介导的同伴支持:系统评价综述和差距分析。
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