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从不确定性到理解的桥梁:癌症治疗期间症状管理数字健康技术的意义。

A bridge from uncertainty to understanding: The meaning of symptom management digital health technology during cancer treatment.

作者信息

Darley Andrew, Coughlan Barbara, Maguire Roma, McCann Lisa, Furlong Eileen

机构信息

School of Medicine, University College Dublin, Dublin, Ireland.

School of Nursing, Midwifery and Health Systems, University College Dublin, Dublin, Ireland.

出版信息

Digit Health. 2023 Jan 22;9:20552076231152163. doi: 10.1177/20552076231152163. eCollection 2023 Jan-Dec.

Abstract

OBJECTIVE

Digital health technology is valued as a tool to provide person-centred care and improve health outcomes amongst people with cancer and their family caregivers. Although the evidence to date shows encouraging effectiveness, there is limited knowledge regarding the lived experience and personal meaning of using supportive technology during cancer treatment. The aim of this study was to explore the lived experiences of people with colorectal cancer receiving chemotherapy using digital health symptom management technology and their family caregivers.

METHODS

A longitudinal and multi-perspective interpretative phenomenological analytical approach was adopted including three people with newly diagnosed colorectal cancer and four family caregivers.

FINDINGS

Three superordinate themes and related subthemes were identified. The first theme (The 3 Cs of symptom management technology) centred on the continuity of care that participants felt while using the technology. The second theme (Digital health technology as a psychosocial support) offered insights into the psychological benefits using technology incurred as they navigated their cancer diagnosis including sense of control and psychological safety. The final theme (Impact of digital health technology on family caregivers) details the supportive effect the technology had on family caregivers' role, responsibilities and well-being during the cancer experience.

CONCLUSION

Digital health technology can act as a bridge from uncertainty to an understanding regarding a cancer diagnosis and its treatment. Digital health technology can support peoples' understanding of cancer and enhance self-management practices, while being a psychological support in navigating the uncertain and often worrying period of receiving cancer treatment.

摘要

目的

数字健康技术被视为一种工具,可为癌症患者及其家庭护理人员提供以患者为中心的护理并改善健康结果。尽管迄今为止的证据显示出令人鼓舞的效果,但对于在癌症治疗期间使用支持性技术的生活体验和个人意义,人们了解有限。本研究的目的是探讨使用数字健康症状管理技术的结直肠癌化疗患者及其家庭护理人员的生活体验。

方法

采用纵向和多视角的解释现象学分析方法,纳入三名新诊断的结直肠癌患者和四名家庭护理人员。

结果

确定了三个上位主题及相关子主题。第一个主题(症状管理技术的3C)围绕参与者在使用该技术时感受到的护理连续性。第二个主题(数字健康技术作为一种社会心理支持)深入探讨了在应对癌症诊断过程中使用技术所带来的心理益处,包括控制感和心理安全感。最后一个主题(数字健康技术对家庭护理人员的影响)详细阐述了该技术在癌症经历期间对家庭护理人员的角色、责任和幸福感的支持作用。

结论

数字健康技术可以成为一座桥梁,将癌症诊断及其治疗从不确定性引向理解。数字健康技术可以支持人们对癌症的理解并加强自我管理实践,同时在应对接受癌症治疗这一不确定且通常令人担忧的时期提供心理支持。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7cab/9880573/e650f7ff5bde/10.1177_20552076231152163-fig1.jpg

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