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超越关怀:智力残疾者在疫情封锁期间面临的新脆弱性

More-than-care: People with intellectual disability and emerging vulnerability during pandemic lockdown.

作者信息

van Holstein Ellen, Wiesel Ilan, Bigby Christine, Gleeson Brendan

机构信息

RMIT Melbourne Victoria Australia.

School of Geography, Earth and Atmospheric Sciences University of Melbourne Carlton Victoria Australia.

出版信息

Trans Inst Br Geogr. 2023 Jan 11. doi: 10.1111/tran.12595.

Abstract

This paper offers more-than-care as a framework for analysing how vulnerability emerges in the lives of people with intellectual disability beyond relations of care. More-than-care detaches vulnerability from the identity category of disability. It provides a framework for conceptualising vulnerability in an unequal, neoliberalising, and ableist world and sheds new light on the ever-evolving constitution of vulnerability and disability. This intervention breaks with conceptions of vulnerability centred on care needs that leave other circumstances that inform vulnerabilities unexamined. Importantly, the framework shifts responsibility for managing vulnerabilities away from carers alone. The more-than-care framework is grounded in socio-material conceptualisations of disability and advances a tripartite framing of vulnerability. First, it grounds studies of vulnerability in histories of spatially uneven investment in infrastructure and resources that shape how care and other practices can assemble to produce, challenge, and manage vulnerability. Second, it recalibrates dominant conceptions of the temporality of vulnerability to ensure sensitivity to the unpredictability of emergent vulnerabilities. Third, in following a socio-material conceptualisation of intellectual disability, more-than-care expands discussions about agency in the context of vulnerability. These concepts are empirically examined through an analysis of how vulnerability emerges in the lives of four self-advocates with intellectual disability during Melbourne's first and second COVID-19 lockdowns. The analysis shows that vulnerability was highly dynamic and unpredictable as it emerged in complex socio-material assemblages that included care arrangements, embodied experiences and agencies, and past instances of neglect and exploitation.

摘要

本文提出了“超越照料”这一框架,用于分析智力残疾者生活中如何在照料关系之外产生脆弱性。“超越照料”将脆弱性与残疾的身份类别相分离。它为在一个不平等、新自由主义化且存在能力主义的世界中概念化脆弱性提供了一个框架,并为脆弱性和残疾不断演变的构成带来了新的启示。这种干预打破了以照料需求为中心的脆弱性观念,而这些观念使其他导致脆弱性的情况未得到审视。重要的是,该框架将管理脆弱性的责任从仅由照料者承担转移开来。“超越照料”框架基于对残疾的社会物质概念化,并提出了一个关于脆弱性的三方框架。首先,它将对脆弱性的研究建立在基础设施和资源空间不均衡投资的历史基础上,这些投资塑造了照料和其他实践如何组合以产生、挑战和管理脆弱性。其次,它重新校准了对脆弱性时间性的主导观念,以确保对突发脆弱性的不可预测性保持敏感。第三,遵循对智力残疾的社会物质概念化,“超越照料”在脆弱性背景下扩展了关于能动性的讨论。通过分析墨尔本首次和第二次新冠疫情封锁期间四名智力残疾自我倡导者生活中脆弱性是如何出现的,对这些概念进行了实证检验。分析表明,脆弱性在复杂的社会物质组合中出现时具有高度动态性和不可预测性,这些组合包括照料安排、身体体验和能动性,以及过去的忽视和剥削事例。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7f76/9878152/d67e8505d2e8/TRAN-9999-0-g001.jpg

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