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儿童斑秃的社会心理影响:一项调查研究。

Psychosocial impact of pediatric alopecia areata: A survey study.

作者信息

Benton Sarah, Bellefeuille Gretchen, Rypka Katelyn, Nguyen Audrey, Raymond Ora, Gorbatenko-Roth Kristina, Maguiness Sheilagh, Hordinsky Maria K

机构信息

Department of Dermatology, University of Minnesota Medical School, Minneapolis, Minnesota, USA.

Sidney Kimmel Medical College, Thomas Jefferson Medical College, Philadelphia, Pennsylvania, USA.

出版信息

Pediatr Dermatol. 2023 Mar;40(2):312-314. doi: 10.1111/pde.15237. Epub 2023 Feb 1.

DOI:10.1111/pde.15237
PMID:36722625
Abstract

This study, which aimed to identify distress by sites of hair loss and psychosocial stressors for a pediatric alopecia areata population, enrolled 50 patients (32 females, 18 males, ages 7-17 years) from pediatric dermatology clinics, including a monthly hair disease clinic. Patients completed a 47-question survey. Scalp hair loss was rated as often or always bothersome in 34.7%; eyebrow loss in 24.3%; and eyelash loss in 21.6%, and 6 patients (12%) discontinued a social activity due to hair loss. Referral to behavioral/mental health specialists should be considered to improve psychosocial outcomes.

摘要

本研究旨在确定儿童斑秃患者脱发部位的困扰及心理社会压力源,从儿科皮肤科诊所(包括每月一次的毛发疾病诊所)招募了50名患者(32名女性,18名男性,年龄7至17岁)。患者完成了一项包含47个问题的调查问卷。34.7%的患者认为头皮脱发经常或总是令人困扰;24.3%的患者认为眉毛脱发令人困扰;21.6%的患者认为睫毛脱发令人困扰,6名患者(12%)因脱发而停止了社交活动。应考虑转介至行为/心理健康专家处,以改善心理社会结局。

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Psychosocial impact of pediatric alopecia areata: A survey study.儿童斑秃的社会心理影响:一项调查研究。
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Patient-Reported Burden of Severe Alopecia Areata: First Results from the Multinational Alopecia Areata Unmet Need Survey.患者报告的重度斑秃负担:多国斑秃未满足需求调查的初步结果
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The Role of Patients in Alopecia Areata Endpoint Development: Understanding Physical Signs and Symptoms.患者在斑秃终点发展中的作用:了解身体体征和症状。
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Predictors of QOL in Patients with Alopecia Areata.斑秃患者生活质量的预测因素。
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Severity of disease and quality of life in parents of children with alopecia areata, totalis, and universalis: A prospective, cross-sectional study.斑秃患儿父母的疾病严重程度和生活质量:一项前瞻性、横断面研究。
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Clin Transl Allergy. 2025 May;15(5):e70061. doi: 10.1002/clt2.70061.
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Psychosocial impact of alopecia areata in paediatric and adolescent populations: A systematic review.斑秃对儿童和青少年人群的心理社会影响:一项系统综述。
J Paediatr Child Health. 2024 Dec;60(12):778-782. doi: 10.1111/jpc.16678. Epub 2024 Oct 7.
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Impact and Management of Loss of Eyebrows and Eyelashes.眉毛和睫毛缺失的影响与处理
Dermatol Ther (Heidelb). 2023 Jun;13(6):1243-1253. doi: 10.1007/s13555-023-00925-z. Epub 2023 May 15.