• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

How many billions is enough? Prioritizing profits over patients with cystic fibrosis.

作者信息

McGarry Meghan E, Gibb Elizabeth R, Laguna Theresa A, O'Sullivan Brian P, Sawicki Gregory S, Zobell Jeffery T

机构信息

Department of Pediatrics, Division of Pediatric Pulmonary Medicine, University of California San Francisco, San Francisco, California, USA.

Department of Pediatrics, Division of Pulmonary Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.

出版信息

Pediatr Pulmonol. 2023 May;58(5):1595-1597. doi: 10.1002/ppul.26335. Epub 2023 Feb 10.

DOI:10.1002/ppul.26335
PMID:36722731
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10121825/
Abstract
摘要

相似文献

1
How many billions is enough? Prioritizing profits over patients with cystic fibrosis.多少亿才算够？将利润置于囊性纤维化患者之上。
Pediatr Pulmonol. 2023 May;58(5):1595-1597. doi: 10.1002/ppul.26335. Epub 2023 Feb 10.
2
A personalized medicine approach to optimize care for a pediatric cystic fibrosis patient with atypical clinical symptoms.一种个性化医疗方法，用于优化对一名具有非典型临床症状的儿科囊性纤维化患者的护理。
Pediatr Pulmonol. 2024 Jan;59(1):229-232. doi: 10.1002/ppul.26719. Epub 2023 Oct 11.
3
[Challenges of personalized medicine for cystic fibrosis].[囊性纤维化个性化医疗面临的挑战]
Arch Pediatr. 2015 Jul;22(7):778-86. doi: 10.1016/j.arcped.2015.04.015. Epub 2015 May 26.
4
Towards personalized medicine for cystic fibrosis patients with rare mutations.面向患有罕见突变的囊性纤维化患者的个性化医疗。
J Physiol. 2024 Jan;602(2):257-258. doi: 10.1113/JP286135. Epub 2024 Jan 3.
5
Cystic fibrosis and bone disease: defective osteoblast maturation with the F508del mutation in cystic fibrosis transmembrane conductance regulator.囊性纤维化与骨病：囊性纤维化跨膜传导调节因子中F508del突变导致成骨细胞成熟缺陷。
Am J Respir Crit Care Med. 2014 Mar 15;189(6):746-8. doi: 10.1164/rccm.201312-2144LE.
6
Nasal epithelial cells as a gold-standard predictive model for personalized medicine in cystic fibrosis.鼻上皮细胞作为囊性纤维化个性化医疗的金标准预测模型。
J Physiol. 2022 Mar;600(6):1285-1286. doi: 10.1113/JP282586. Epub 2022 Jan 31.
7
A new era of personalized medicine for cystic fibrosis - at last!囊性纤维化个性化医疗的新时代——终于到来了！
Can Respir J. 2015 Sep-Oct;22(5):257-60. doi: 10.1155/2015/921712. Epub 2015 Jun 17.
8
Novel Applications of Biomarkers and Personalized Medicine in Cystic Fibrosis.生物标志物与个性化医疗在囊性纤维化中的新应用
Clin Chest Med. 2022 Dec;43(4):617-630. doi: 10.1016/j.ccm.2022.06.005.
9
Personalised medicine for cystic fibrosis: treating the basic defect.囊性纤维化的个性化医疗：治疗根本缺陷
Eur Respir Rev. 2013 Mar 1;22(127):3-5. doi: 10.1183/09059180.00008112.
10
Personalized medicine for cystic fibrosis: establishing human model systems.囊性纤维化的个性化医疗：建立人类模型系统。
Pediatr Pulmonol. 2015 Oct;50 Suppl 40:S14-23. doi: 10.1002/ppul.23233.

引用本文的文献

1
Building Lay Society Knowledge and Education for Health Technology Assessment and Policy Engagement: Case of CFTR Modulator Access in Brazil.构建面向卫生技术评估与政策参与的公众社会知识与教育：以巴西CFTR调节剂的可及性为例
Healthcare (Basel). 2025 Aug 14;13(16):1996. doi: 10.3390/healthcare13161996.
2
The ethics and economics of organoid commercialization: potential donors' perspectives.类器官商业化的伦理与经济学：潜在捐赠者的观点
BMC Med Ethics. 2025 Jul 29;26(1):109. doi: 10.1186/s12910-025-01269-3.
3
Affordable Cystic Fibrosis (CF) Transmembrane Conductance Regulator Modulator Drugs for CF: All CF Lives Worldwide Matter!用于囊性纤维化（CF）的价格亲民的囊性纤维化跨膜传导调节因子调节剂药物：全球所有囊性纤维化患者的生命都至关重要！
Am J Respir Crit Care Med. 2023 Nov 1;208(9):915-916. doi: 10.1164/rccm.202307-1200VP.
4
Factors associated with frequent high-cost individuals with cystic fibrosis and their healthcare utilization and cost patterns.与囊性纤维化频繁高额费用个体及其医疗利用和费用模式相关的因素。
Sci Rep. 2023 Jun 1;13(1):8910. doi: 10.1038/s41598-023-35942-7.
5
Willingness of people with cystic fibrosis receiving elexacaftor/tezacaftor/ivacaftor (ETI) to participate in randomized modulator and inhaled antimicrobial clinical trials.囊性纤维化患者接受 elexacaftor/tezacaftor/ivacaftor（ETI）治疗愿意参加随机调节剂和吸入性抗菌药物临床试验的意愿。
J Cyst Fibros. 2023 Jul;22(4):652-655. doi: 10.1016/j.jcf.2023.04.007. Epub 2023 Apr 24.
6
Real-world disparities and ethical considerations with access to CFTR modulator drugs: Mind the gap!囊性纤维化跨膜传导调节因子调节剂药物可及性方面的现实世界差异与伦理考量：关注差距！
Front Pharmacol. 2023 Mar 27;14:1163391. doi: 10.3389/fphar.2023.1163391. eCollection 2023.
7
Elexacaftor-Tezacaftor-Ivacaftor: A Life-Changing Triple Combination of CFTR Modulator Drugs for Cystic Fibrosis.依列卡福妥-替扎卡福妥-依伐卡托：用于囊性纤维化的改变人生的三联组合CFTR调节剂药物。
Pharmaceuticals (Basel). 2023 Mar 8;16(3):410. doi: 10.3390/ph16030410.

本文引用的文献

1
Current prices versus minimum costs of production for CFTR modulators.当前价格与 CFTR 调节剂的最低生产成本。
J Cyst Fibros. 2022 Sep;21(5):866-872. doi: 10.1016/j.jcf.2022.04.007. Epub 2022 Apr 16.
2
Left behind: The potential impact of CFTR modulators on racial and ethnic disparities in cystic fibrosis.遗留问题：CFTR 调节剂对囊性纤维化中种族和民族差异的潜在影响。
Paediatr Respir Rev. 2022 Jun;42:35-42. doi: 10.1016/j.prrv.2021.12.001. Epub 2021 Dec 22.
3
Rapid Improvement after Starting Elexacaftor-Tezacaftor-Ivacaftor in Patients with Cystic Fibrosis and Advanced Pulmonary Disease.在患有囊性纤维化和晚期肺部疾病的患者中开始使用 Elexacaftor-Tezacaftor-Ivacaftor 后的快速改善。
Am J Respir Crit Care Med. 2021 Jul 1;204(1):64-73. doi: 10.1164/rccm.202011-4153OC.
4
The effectiveness and value of novel treatments for cystic fibrosis.新型囊性纤维化治疗方法的效果和价值。
J Manag Care Spec Pharm. 2021 Feb;27(2):276-280. doi: 10.18553/jmcp.2021.27.2.276.
5
Elexacaftor-Tezacaftor-Ivacaftor for Cystic Fibrosis with a Single Phe508del Allele.依伐卡托与泰比卡托和艾克卡托三联复方药物治疗携带单个 F508del 突变的囊性纤维化
N Engl J Med. 2019 Nov 7;381(19):1809-1819. doi: 10.1056/NEJMoa1908639. Epub 2019 Oct 31.
6
Pregnancy among cystic fibrosis women in the era of CFTR modulators.CFTR 调节剂时代囊性纤维化女性的妊娠问题。
J Cyst Fibros. 2017 Nov;16(6):687-694. doi: 10.1016/j.jcf.2017.01.008. Epub 2017 Feb 10.