Department of Child and Adolescent Psychiatry and Behavioral Sciences, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
The Fuqua School of Business, Duke University, Durham, North Carolina, USA.
Int J Eat Disord. 2023 May;56(5):1011-1020. doi: 10.1002/eat.23902. Epub 2023 Feb 3.
For youth with anorexia nervosa (AN), remission requires high caloric goals to achieve weight restoration, consumption of a wide variety of calorically dense foods, and reintroduction of eliminated foods. Family-based treatment (FBT), the gold-standard treatment for youth with AN, empowers parents to renourish their child and restore them to health; yet, parents often report struggling with shifting meal planning and grocery shopping behaviors to focus on nutritional rehabilitation and weight restoration.
This proof-of-concept study aimed to modify a simulated grocery store (Open Science Online Grocery [OSOG]) for parents of youth with AN and explore the acceptability and feasibility of its use as part of standard care. Study staff collaborated with six parent research partners to modify the OSOG prior to piloting it with participants. Participants were 10 parents of youth undergoing a first-time hospitalization for medical stabilization of AN or atypical AN. Parents completed a battery of measures and a semistructured interview assessing the acceptability and feasibility of OSOG.
Parents described the tool as credible and acceptable. Qualitative feedback highlighted common themes of caregiver burden, nutrition education, and acceptability of the tool.
Results point to the need for more work in supporting parents in Phase I of FBT.
Families are instrumental in supporting youth to recover from anorexia nervosa. During treatment, parents are charged with selecting and serving their adolescent's meals, often requiring them to change grocery shopping and food preparation habits to meet their child's high caloric needs. Parents reported feeling overwhelmed by this task and noted struggling with learning different approaches to nourish their adolescent during an already stressful time. Collaboratively with parents, we modified a tool to support parents in shifting thier shopping habits, which they reported as being a helpful springboard in the early phase of treatment.
对于患有神经性厌食症（AN）的年轻人来说，缓解需要高热量目标来实现体重恢复，消耗各种各样高热量的食物，并重新引入已消除的食物。家庭为基础的治疗（FBT）是治疗 AN 青少年的金标准，它使父母能够为孩子提供营养，并使他们恢复健康；然而，父母经常报告在改变膳食计划和杂货店购物行为以专注于营养康复和体重恢复方面存在困难。
这项概念验证研究旨在为患有 AN 的青少年的父母修改一个模拟杂货店（开放式科学在线杂货店（OSOG）），并探索将其作为标准护理的一部分使用的可接受性和可行性。研究人员与六名家长研究合作伙伴合作，在对参与者进行试点之前对 OSOG 进行了修改。参与者是 10 名接受首次住院治疗以稳定 AN 或非典型 AN 病情的青少年的父母。父母完成了一系列措施和半结构化访谈，评估了 OSOG 的可接受性和可行性。
父母认为该工具具有可信度和可接受性。定性反馈突出了照顾者负担、营养教育和工具可接受性的共同主题。
结果表明，需要更多的工作来支持 FBT 的第一阶段的父母。
家庭在支持青少年从厌食症中康复方面起着重要作用。在治疗期间，父母负责选择和为他们的青少年提供膳食，这通常需要他们改变杂货店购物和食物准备习惯，以满足他们孩子的高热量需求。父母报告感到这项任务负担过重，并指出在已经紧张的时期，他们在学习不同的方法来滋养他们的青少年方面存在困难。我们与父母合作，修改了一个支持父母改变购物习惯的工具，他们报告说这是治疗早期的一个有用的跳板。
