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慢性病患者的生活。

Living with Chronic Illness.

机构信息

Department of Public Health, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen K, Denmark.

出版信息

Med Anthropol. 2023 Feb 17;42(2):191-205. doi: 10.1080/01459740.2023.2174023. Epub 2023 Feb 6.

Abstract

Mobile health smartphone applications (mHealth apps) enable patients to monitor how chronic illness interconnects with their everyday life. I explore, through focus group discussions, how such monitoring makes sense to pediatric and young patients and parents in Denmark. These groups explicate how they live both with and without chronic illness by distinguishing between to focus on aspects of it. I argue that this relationship with chronic illness produces parent's, children's, and young people's ambivalent attitudes toward mHealth apps that promote illness monitoring "anywhere" and at "any time."

摘要

移动医疗智能手机应用程序(mHealth 应用程序)使患者能够监测慢性病如何与其日常生活相互关联。我通过焦点小组讨论探讨了这种监测对丹麦儿科和年轻患者及其父母的意义。这些群体通过区分日常生活中的慢性疾病,阐述了他们如何在有和没有慢性疾病的情况下生活。我认为,这种与慢性疾病的关系导致了父母、儿童和年轻人对促进随时随地监测疾病的 mHealth 应用程序的矛盾态度。

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