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癌症照料者的负担预测:社会支持与联系的作用。

Burden prediction in cancer caregivers: role of social support and connectedness.

作者信息

Yuen Eva Yn, Wilson Carlene, Livingston Patricia M, White Victoria M, McLeod Vicki, Hutchinson Alison M

机构信息

School of Nursing and Midwifery, Deakin University, Burwood, Victoria, Australia

Centre for Quality and Patient Safety, Institute for Health Transformation, Burwood, VIC, Australia.

出版信息

BMJ Support Palliat Care. 2023 Feb 6. doi: 10.1136/spcare-2022-004070.

Abstract

OBJECTIVES

Caregivers play a key role in providing support to people with cancer. However, caregiving can be stressful and demanding, resulting in perceived caregiver burden. Social connectedness is considered partially independent from social support, yet few studies have examined whether social connectedness impacts caregiver burden. The current study sought to examine: (a) associations among social support, social connectedness and burden in a sample of cancer caregivers and (b) the mediating effect of social connectedness on the relationship between social support and caregiver burden.

METHODS

A descriptive cross-sectional study was conducted. Data were collected as part of a larger project. The sample included 125 caregiver-cancer care recipient dyads. Caregivers completed the Social Connectedness Scale-Revised, the Medical Outcomes Study-Social Support Survey and the Zarit Burden Interview. Descriptive statistics, hierarchical multiple regression and mediation analyses were used to examine relationships between variables.

RESULTS

Correlation analyses showed higher perceived social support and social connectedness were significantly correlated with lower-reported caregiver burden (p<0.05). The hierarchical regression model showed that both social support and social connectedness were independent predictors of caregiver burden (p<0.001). Social connectedness partially mediated the relationship between social support and caregiver burden.

CONCLUSIONS

This study provides new evidence that social support buffers the negative effects of burden in caregivers, suggesting these are potentially modifiable factors of caregiver burden. Increased understanding of the factors that contribute to burden among cancer caregivers will inform targeted supportive care strategies to improve psychological health and well-being in this underserved group.

摘要

目的

照顾者在为癌症患者提供支持方面发挥着关键作用。然而,照顾工作可能会带来压力且要求颇高,从而导致照顾者感受到负担。社会联结被认为部分独立于社会支持,但很少有研究探讨社会联结是否会影响照顾者负担。本研究旨在考察:(a)癌症照顾者样本中社会支持、社会联结与负担之间的关联,以及(b)社会联结在社会支持与照顾者负担关系中的中介作用。

方法

开展了一项描述性横断面研究。数据作为一个更大项目的一部分进行收集。样本包括125对照顾者 - 癌症患者二元组。照顾者完成了修订后的社会联结量表、医学结局研究社会支持调查以及 Zarit 负担访谈。使用描述性统计、分层多元回归和中介分析来考察变量之间的关系。

结果

相关分析表明,较高的感知社会支持和社会联结与较低的照顾者负担报告显著相关(p<0.05)。分层回归模型显示,社会支持和社会联结都是照顾者负担的独立预测因素(p<0.001)。社会联结部分中介了社会支持与照顾者负担之间的关系。

结论

本研究提供了新的证据,表明社会支持缓冲了照顾者负担的负面影响,这表明这些可能是照顾者负担的潜在可改变因素。对导致癌症照顾者负担的因素有更多了解,将为有针对性的支持性护理策略提供依据,以改善这个未得到充分服务群体的心理健康和幸福感。

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