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自闭症谱系障碍儿童沟通和语言技能方面的父母压力

Parental Stress Regarding Communication and Language Skills in Children with Autistic Spectrum Disorders.

作者信息

Ibrahimagić Amela, Patković Nedim, Hadžić Selmir, Radić Bojan

机构信息

Department of speech and language pathology and audiology, Faculty of Education and Rehabilitation, University of Tuzla, Univerzitetska no 1, 75 000, Tuzla, Bosnia and Herzegovina,

出版信息

Psychiatr Danub. 2022 Dec;34(Suppl 10):44-52.

Abstract

BACKGROUND

Autistic spectrum disorders (ASD) are neurodevelopmental disorders that most often have profound impact on a person itself, as well as on parents, caretakers, and family life in whole. Parents of a child with ASD often have higher levels of stress and psychological distress. Aim of this study was to examine the stress sources, its frequency and predictability in parents of children with ASD, in relation to the communication and language skills of their children.

SUBJECTS AND METHODS

The sample consisted of 80 participants who are parents of children with ASD. The study was conducted using a questionnaire made for this research. Three groups of variables were analyzed: parental stress; child's communication; and child's language variables. Statistical analysis was performed by SPSS and included basic statistical parameters and multiple regression analysis.

RESULTS

The most common sources of parental stress are caring for the child's future; difficulties of the child with speech, language and communication; difficulties of the child in establishing contact with peers and other persons; and inappropriate behavior of the child (anger, aggression, stereotypical behaviors…). Multiple regression analyses used to determine whether a child's communication and language skills were valid predictors of parental stress showed significance.

CONCLUSIONS

ASD child's skills like showing gestures; looking, answering, and turning when called by name; making it known when he/she needs help or wants an object; answering simple 'Yes/No' questions; and establishing contact with peers, are valid predictors of some stress sources of the parents. Proper involvement in the development of a child's communication and language skills has numerous benefits, not only for the child, but also for the parental stress recognition and its potential frequency decrease.

摘要

背景

自闭症谱系障碍(ASD)是神经发育障碍,通常对患者本人以及父母、照料者和整个家庭生活都会产生深远影响。ASD患儿的父母往往承受着更高水平的压力和心理困扰。本研究的目的是探讨ASD患儿父母的压力源、其发生频率以及可预测性,并分析这些因素与患儿沟通和语言技能之间的关系。

研究对象与方法

样本包括80名ASD患儿的父母。本研究采用专门为此项研究设计的问卷进行。分析了三组变量:父母压力、儿童沟通能力和儿童语言变量。使用SPSS进行统计分析,包括基本统计参数和多元回归分析。

结果

父母压力最常见的来源包括担心孩子的未来;孩子在言语、语言和沟通方面的困难;孩子在与同龄人及其他人建立联系方面的困难;以及孩子的不当行为(愤怒、攻击、刻板行为等)。用于确定儿童沟通和语言技能是否是父母压力有效预测因素的多元回归分析显示具有显著性。

结论

ASD患儿的一些技能,如做出手势;被点名时看向、回应并转头;在需要帮助或想要某样东西时表达出来;回答简单的“是/否”问题;以及与同龄人建立联系,是父母某些压力源的有效预测因素。适当地参与孩子沟通和语言技能的发展有诸多益处,不仅对孩子有益,对父母认识压力及其潜在频率的降低也有益。

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