UMR1296, Université Lyon 2, Lyon, France.
CHRU de Strasbourg, Strasbourg, France.
PLoS One. 2023 Feb 9;18(2):e0276800. doi: 10.1371/journal.pone.0276800. eCollection 2023.
Social science studies on the controversy surrounding Lyme disease (LD) focused on the opposition between the "mainstream" and biomedical approach on one side and the "Lyme-literate" one on the other side, the latter claiming the existence of the chronic form of LD. The qualitative and exploratory study 'C18-48 Quali-Explo-PIQTIQ' (2019) investigated the social representations of LD in patients bitten by a tick. Twenty-four semi-structured interviews were conducted in three French medical units. Thematic and patient trajectory analyses were performed. Our results showed that, after the tick bite, some patients presented an "illness without disease" condition, characterised by uncertainty. In some cases, they consulted "Lyme-literate" health providers and received a diagnosis of chronic LD. This diagnosis was obtained by prescribing unassessed biological testing, providing an objective result and clinical categorisation. Unlike literature on the "Lyme-literate" approach, this diagnostic procedure involved some biomedical operations.
社会科学对莱姆病(LD)争议的研究主要集中在“主流”和生物医学方法一方与“莱姆病知识渊博”一方的对立上,后者声称存在慢性 LD 形式。定性和探索性研究“C18-48 Quali-Explo-PIQTIQ”(2019 年)调查了被蜱叮咬的患者对 LD 的社会表征。在三个法国医疗单位进行了 24 次半结构化访谈。进行了主题和患者轨迹分析。我们的结果表明,在蜱叮咬后,一些患者出现了“无病有病”的情况,表现出不确定性。在某些情况下,他们咨询了“莱姆病知识渊博”的医疗服务提供者,并被诊断为慢性 LD。这一诊断是通过开未经评估的生物测试得出的,提供了客观的结果和临床分类。与“莱姆病知识渊博”方法的文献不同,这一诊断程序涉及一些生物医学操作。
PLoS One. 2023
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