评估烧伤特征对儿童烧伤患者及其照顾者生活质量的影响。

Evaluating effects of burn injury characteristics on quality of life in pediatric burn patients and caregivers.

机构信息

Center for Surgical Outcomes Research, Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, OH, USA.

Center for Surgical Outcomes Research, Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, OH, USA; Veteran Affairs Palo Alto Health System (VAPAHCS), Palo Alto, CA, USA,; Stanford University School of Medicine, Stanford, CA, USA.

出版信息

Burns. 2023 Sep;49(6):1311-1320. doi: 10.1016/j.burns.2023.01.010. Epub 2023 Jan 31.

DOI:10.1016/j.burns.2023.01.010

PMID:36764839

Abstract

OBJECTIVES

The purpose of this study was to evaluate pediatric burn patients' and caregivers' quality of life (QoL), while identifying clinical characteristics correlated with psychological stress.

METHODS

Pediatric burn patients at an ABA-verified institution from November 2019-January 2021 were included. Caregivers of patients 0-4 years completed the Infant's Dermatology QoL Index (IDQOL). Patients> 4-16 years completed the Children's Dermatology Life Quality Index (CDLQI). The Short Post-Traumatic Stress Disorder Rating Interview (SPRINT) measured caregivers' stress. Generalized linear mixed models evaluated associations between assessment scores and burn characteristics.

RESULTS

Overall, 27.3% (39/143) of IDQOL and 53.1.% (41/96) of CDLQI scores indicated that patients' burns caused moderate to extremely large effects on QoL. In caregivers, 4.5% (7/159) scored> 14 on the SPRINT, warranting further PTSD evaluation. For the IDQOL, each additional 1% TBSA burn was associated with a 2.75-point increase (p = 0.05), and patients sustaining 2nd degree deep partial thickness burns scored an average of 3.3 points higher compared to 2nd degree superficial partial thickness burns (P < 0.01). CLDQI and SPRINT scores demonstrated a similar pattern.

CONCLUSIONS

QoL is impacted in a substantial proportion of pediatric burn patients. Larger TBSA and increased burn depths cause significantly more psychological stress in children, and caregivers may require more extensive psychological evaluation.

摘要

目的

本研究旨在评估儿科烧伤患者及其照顾者的生活质量（QoL），同时确定与心理压力相关的临床特征。

方法

纳入了 2019 年 11 月至 2021 年 1 月期间在一家经过 ABA 认证的机构就诊的儿科烧伤患者。0-4 岁患儿的照顾者完成婴儿皮肤病生活质量指数（IDQOL），4-16 岁患儿完成儿童皮肤病生活质量指数（CDLQI）。使用短期创伤后应激障碍评定量表（SPRINT）评估照顾者的压力。广义线性混合模型评估了评估得分与烧伤特征之间的关联。

结果

总体而言，39/143 份 IDQOL 和 41/96 份 CDLQI 评分表明患者的烧伤对生活质量产生了中度到极大的影响。在照顾者中，7/159 名照顾者的 SPRINT 得分>14，需要进一步进行 PTSD 评估。对于 IDQOL，每增加 1% TBSA 烧伤，得分增加 2.75 分（p=0.05），与 2 度浅度烧伤相比，2 度深度烧伤患儿的得分平均高 3.3 分（P<0.01）。CDLQI 和 SPRINT 评分表现出相似的模式。