Research Centre Healthy and Sustainable Living, HU University of Applied Sciences Utrecht, the Netherlands.
Department of Languages, Literature and Communication, Institute for Language Sciences (ILS), Utrecht University, the Netherlands.
J Speech Lang Hear Res. 2023 Mar 7;66(3):1033-1050. doi: 10.1044/2022_JSLHR-22-00405. Epub 2023 Feb 14.
The purpose of this study was to gain a comprehensive understanding of participation situations that are challenging for people with communication problems, to provide input for the further development of potential items for the Communicative Participation Item Bank (CPIB).
A purposive sampling strategy was used to include a diverse group of people with communication problems. Diaries were used as a sensitizing exercise for inductive in-depth interviews. In these interviews, elements of communicative participation situations (concepts) were elicited that participants themselves experienced as difficult because of their communication problem. A thematic content analysis was used to identify overarching themes. In addition, new items were formulated based on the raw codes of the transcripts and linked to the International Classification of Functioning, Disability and Health Activity and Participation domains to examine the distribution of items across the breadth of the construct of communicative participation.
Eighteen interviews yielded 44 different concepts. They were clustered in six themes, which capture the person, location, topic, mode, moment, and pace of communication. In total, 103 new items measuring communicative participation were formulated. Most of these items relate to International Classification of Functioning, Disability and Health Activity and Participation domains "interpersonal interactions and relationships," "major life areas," and "community, social, and civic life."
This study resulted in an overview of self-reported barriers in daily communicative participation experienced by people with communication problems. These communicative participation situations can be captured within 44 concepts, which are covered by six themes. Future work should investigate if the newly written items can be added to the CPIB. The concepts and the themes can be used in designing and delivering a participation-focused intervention for this population.
本研究旨在全面了解对有沟通障碍的人来说具有挑战性的参与情况，为进一步开发沟通参与项目库（CPIB）的潜在项目提供依据。
采用目的性抽样策略，纳入了具有不同沟通障碍的人群。日记被用作启发式深入访谈的敏化练习。在这些访谈中，参与者自己因沟通问题而经历的困难的沟通参与情况的要素（概念）被引出。采用主题内容分析法识别总体主题。此外，根据转录本的原始代码制定了新的项目，并与国际功能、残疾和健康分类活动和参与领域联系起来，以检查项目在沟通参与结构的广度上的分布。
18 次访谈产生了 44 个不同的概念。它们被聚类为六个主题，这些主题捕捉了沟通的人、地点、主题、模式、时刻和节奏。总共制定了 103 个新的衡量沟通参与的项目。其中大多数与国际功能、残疾和健康分类活动和参与领域“人际互动和关系”、“主要生活领域”和“社区、社会和公民生活”有关。
本研究概述了有沟通障碍的人在日常沟通参与中自我报告的障碍。这些沟通参与情况可以用 44 个概念来捕捉，这些概念涵盖在六个主题中。未来的工作应该调查新编写的项目是否可以添加到 CPIB 中。这些概念和主题可以用于为该人群设计和提供以参与为重点的干预措施。
