Research Centre Healthy and Sustainable Living, HU University of Applied Sciences Utrecht, P.O. box 12011, Utrecht, 3501 AA, The Netherlands.
Department of Languages, Literature and Communication, Utrecht Institute of Linguistics OTS, Utrecht University, Utrecht, The Netherlands.
J Patient Rep Outcomes. 2023 May 26;7(1):49. doi: 10.1186/s41687-023-00586-8.
The ability to communicate is a prerequisite for participation in today's society. To measure participation in adults with communication disorders, the Communicative Participation Item Bank (CPIB) was developed in 2006. Since then, several new PROMs have been developed to measure communication and the impact of communication disorders on participation. Moreover, the CPIB items do not all appear to be relevant to certain populations with communication problems and context of communicative participation is changing rapidly, given the increased use of digital communication forms. The purpose of this study was to identify new PROMs developed since 2006 that aim to measure (aspects of) communication, in order to select items that are suitable for expanding the Communicative Participation Item Bank to make the item bank more widely applicable (e.g., to the hearing-impaired population) and tailored to the current societal context.
Medline and Embase were used to search for PROMs that aim to measure (aspects of) communication. Each new PROM as well as the CPIB, was evaluated to determine to what extent it contains items that measure communicative participation and to what extent these items capture all communicative participation domains by linking each item to the ICF Activities and Participation domains.
This study identified 31 new PROMs, containing 391 items that were labelled as measuring communicative participation. The majority of the 391 items measure aspects of ICF Activities and Participation domain 'communication', followed by the domain 'interpersonal interactions and relationships'. The other ICF Activity and Participation domains were less often addressed. Analysis of the CPIB showed that items do not cover all domains of participation as defined in the ICF, such as the 'major life areas' domain.
We found a potential pool of 391 items measuring communicative participation that could be considered for extending the CPIB. We found items in domains that are already present in the CPIB, but also items that relate to new domains, such as an item on talking with customers or clients for the 'major life areas' domain. Inclusion of new items in other domains would benefit the comprehensiveness of the item bank.
沟通能力是当今社会参与的前提。为了衡量有沟通障碍的成年人的参与程度，2006 年开发了沟通参与项目库（CPIB）。此后，开发了几个新的 PROM 来衡量沟通以及沟通障碍对参与的影响。此外，CPIB 的项目似乎并不都与某些有沟通问题的人群相关，并且由于数字沟通形式的使用增加，沟通参与的背景也在迅速变化。本研究的目的是确定自 2006 年以来开发的新 PROM，旨在衡量（沟通的）各个方面，以便选择适合扩展沟通参与项目库的项目，使项目库更广泛地适用（例如，适用于听力受损人群），并适应当前的社会背景。
使用 Medline 和 Embase 搜索旨在衡量（沟通的）各个方面的 PROM。对每个新的 PROM 和 CPIB 进行评估，以确定它在多大程度上包含了衡量沟通参与的项目，以及通过将每个项目与 ICF 活动和参与领域联系起来，这些项目在多大程度上涵盖了所有沟通参与领域。
本研究确定了 31 个新的 PROM，包含 391 个被标记为衡量沟通参与的项目。这 391 个项目中的大多数衡量 ICF 活动和参与领域“沟通”的各个方面，其次是“人际互动和关系”领域。其他 ICF 活动和参与领域则较少涉及。对 CPIB 的分析表明，项目并未涵盖 ICF 中定义的所有参与领域，例如“主要生活领域”领域。
我们发现了一个潜在的 391 个衡量沟通参与的项目池，可以考虑扩展 CPIB。我们在 CPIB 中已经存在的领域中找到了项目，但也找到了与新领域相关的项目，例如“主要生活领域”领域中与与客户或客户交谈的项目。在其他领域中纳入新的项目将使项目库更全面。
