John Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
The Max Foundation, Seattle, WA, USA.
Curr Hematol Malig Rep. 2023 Feb;18(1):1-7. doi: 10.1007/s11899-022-00686-0. Epub 2023 Feb 15.
The study aims to evaluate the impact of COVID-19 on the delivery of health care and services to patients with chronic myeloid leukemia in low- and middle-income countries (LMICs) accessing treatment through The Max Foundation.
An online survey was developed and sent via email to 527 partner physicians who had active patients under their care in July 2020, asking about the disruption of health services with multiple-choice answers or a five-point ordinal scale. Data from The Max Foundation's Patient Access Tracking System (PATS®) was analyzed to evaluate program performance in 2020 compared with 2019. PATS® is used to track key patient information and supply chain data to ensure robust reporting, quality assurance, and safety. Among the 111 physicians who responded (20% response rate), 48% reported that someone on their team had contracted COVID-19. A total of 95 (85%) physicians reported at least some disruption of services to patients due to COVID-19, with 29 (26%) reporting frequent or complete disruption. Almost all physicians in the South Asia and Asia Pacific regions reported disruption (96% and 95%, respectively), compared with three quarters of physicians in Latin America. Institutions overcame challenges using a variety of solutions including telemedicine (60%), electronic prescriptions (45%), home delivery via courier services (31%), government workers (9%), and dispensation coordination with regional hospitals (14%). The COVID-19 pandemic has disrupted services for CML physicians and patients worldwide. Overall, these disruptions did not appear to significantly affect The Max Foundation's ability to provide patients with access to treatment, as novel approaches in telemedicine, supply chain, and dispensing, as well as provision of guidance and support for physicians were utilized to overcame disruption of services.
目的综述:本研究旨在评估 COVID-19 对通过 The Max 基金会接受治疗的中低收入国家(LMICs)慢性髓系白血病(CML)患者医疗保健和服务的影响。
最新发现:研究人员开发了一项在线调查,并于 2020 年 7 月通过电子邮件发送给 527 名负责活跃患者的合作医生,询问他们在医疗服务方面的中断情况,提供了多项选择答案和五分制等级量表。同时,还分析了 The Max 基金会的患者准入跟踪系统(PATS®)的数据,以评估 2020 年与 2019 年相比项目表现。PATS® 用于跟踪关键患者信息和供应链数据,以确保进行稳健的报告、质量保证和安全。在 111 名回应的医生中(20%的回应率),48%的医生报告说,他们团队中的某人感染了 COVID-19。共有 95 名(85%)医生报告称,由于 COVID-19,至少有一些服务中断,其中 29 名(26%)报告了频繁或完全中断。几乎所有南亚和亚太地区的医生都报告了中断(分别为 96%和 95%),而拉丁美洲四分之三的医生报告了中断。各机构通过各种解决方案克服了挑战,包括远程医疗(60%)、电子处方(45%)、通过快递服务的上门配送(31%)、政府工作人员(9%)以及与区域医院的配药协调(14%)。COVID-19 大流行已经扰乱了全球 CML 医生和患者的服务。总体而言,这些中断似乎并没有显著影响 The Max 基金会为患者提供治疗机会的能力,因为远程医疗、供应链和配药方面的新方法,以及为医生提供的指导和支持,都被用于克服服务中断。