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应对医疗保健差异:如何建立一个结节病中心。

Tackling Health Care Disparities: How to Build a Sarcoidosis Center.

作者信息

Kron Jordana, Syed Aamer, Iden Thomas, Gwathmey Kelly, Polly Kelly, Randolph Jessica, Brar Vikram, Nana-Sinkam Patrick, Ellenbogen Kenneth, Syed Huzaefah

机构信息

Pauley Heart Center, Virginia Commonwealth University, Richmond, Virginia, USA.

Division of Pulmonary and Critical Care Medicine, Virginia Commonwealth University, Richmond, Virginia, USA.

出版信息

Sarcoidosis Vasc Diffuse Lung Dis. 2022;39(3):e2022024. doi: 10.36141/svdld.v39i3.13423. Epub 2022 Sep 23.

Abstract

Sarcoidosis is a multi-organ system inflammatory disease of unknown etiology that disproportionately affects women and black patients in the United States. In addition, woman and minority patients have worse outcomes. In 2015, sarcoidosis physicians in cardiology, pulmonary medicine and rheumatology joined forces to create a multidisciplinary sarcoidosis at Virginia Commonwealth University. In 2019, the clinic was recognized as a World Association of Sarcoidosis and Other Granulomatous Disorders (WASOG) Center of Excellence. We identify four pillars of a patient-centered sarcoidosis clinic: clinical care, research, teaching, and community outreach. We detail how each of these facets plays a critical role in improving the health of individual patients, creating a strong infrastructure to improve the future of sarcoidosis treatment, and developing community-based resources that can empower patients. Most importantly, we highlight how a multidisciplinary clinic can help identify and combat healthcare disparities.

摘要

结节病是一种病因不明的多器官系统炎症性疾病,在美国,女性和黑人患者受其影响的比例过高。此外,女性和少数族裔患者的治疗结果更差。2015年,心脏病学、肺病学和风湿病学领域的结节病医生联合起来,在弗吉尼亚联邦大学创建了一个多学科结节病诊所。2019年,该诊所被认可为结节病和其他肉芽肿性疾病世界协会(WASOG)卓越中心。我们确定了以患者为中心的结节病诊所的四大支柱:临床护理、研究、教学和社区外展。我们详细阐述了这些方面中的每一个如何在改善个体患者健康、创建强大的基础设施以改善结节病治疗的未来以及开发能够增强患者能力的社区资源方面发挥关键作用。最重要的是,我们强调多学科诊所如何有助于识别和消除医疗保健差距。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e9dd/9766846/1bf3b2b15230/SVDLD-39-24-g001.jpg

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