患者在线记录在英国初级保健中的访问:全科医生观点的定性调查研究。
Patient Online Record Access in English Primary Care: Qualitative Survey Study of General Practitioners' Views.
机构信息
Division of General Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, United States.
Digital Psychiatry, Department of Psychiatry, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, United States.
出版信息
J Med Internet Res. 2023 Feb 22;25:e43496. doi: 10.2196/43496.
BACKGROUND
In 2022, NHS England announced plans to ensure that all adult primary care patients in England would have full online access to new data added to their general practitioner (GP) record. However, this plan has not yet been fully implemented. Since April 2020, the GP contract in England has already committed to offering patients full online record access on a prospective basis and on request. However, there has been limited research into UK GPs' experiences and opinions about this practice innovation.
OBJECTIVE
This study aimed to explore the experiences and opinions of GPs in England about patients' access to their full web-based health record, including clinicians' free-text summaries of the consultation (so-called "open notes").
METHODS
In March 2022, using a convenience sample, we administered a web-based mixed methods survey of 400 GPs in the United Kingdom to explore their experiences and opinions about the impact on patients and GPs' practices to offer patients full online access to their health records. Participants were recruited using the clinician marketing service Doctors.net.uk from registered GPs currently working in England. We conducted a qualitative descriptive analysis of written responses ("comments") to 4 open-ended questions embedded in a web-based questionnaire.
RESULTS
Of 400 GPs, 224 (56%) left comments that were classified into 4 major themes: increased strain on GP practices, the potential to harm patients, changes to documentation, and legal concerns. GPs believed that patient access would lead to extra work for them, reduced efficiency, and increased burnout. The participants also believed that access would increase patient anxiety and incur risks to patient safety. Experienced and perceived documentation changes included reduced candor and changes to record functionality. Anticipated legal concerns encompassed fears about increased litigation risks and lack of legal guidance to GPs about how to manage documentation that would be read by patients and potential third parties.
CONCLUSIONS
This study provides timely information on the views of GPs in England regarding patient access to their web-based health records. Overwhelmingly, GPs were skeptical about the benefits of access both for patients and to their practices. These views are similar to those expressed by clinicians in other countries, including Nordic countries and the United States before patient access. The survey was limited by the convenience sample, and it is not possible to infer that our sample was representative of the opinions of GPs in England. More extensive, qualitative research is required to understand the perspectives of patients in England after experiencing access to their web-based records. Finally, further research is needed to explore objective measures of the impact of patient access to their records on health outcomes, clinician workload, and changes to documentation.
背景
2022 年,NHS 英格兰宣布计划确保英格兰所有成年初级保健患者都能全面在线访问其全科医生(GP)记录中新增的数据。然而,该计划尚未完全实施。自 2020 年 4 月以来,英格兰的全科医生合同已经承诺在预期基础上并根据患者请求为其提供全面的在线记录访问。然而,针对英国全科医生对这一实践创新的体验和看法,相关研究十分有限。
目的
本研究旨在探讨英格兰全科医生对患者全面在线访问其健康记录(包括临床医生对咨询的自由文本摘要,即所谓的“开放笔记”)的体验和看法。
方法
2022 年 3 月,我们采用便利抽样方法,对英国的 400 名全科医生进行了一项基于网络的混合方法调查,以探讨他们对这一做法对患者和全科医生实践的影响的体验和看法,即为患者提供全面的在线访问其健康记录的机会。参与者是通过医生营销服务 Doctors.net.uk 从英国注册的全科医生中招募的。我们对嵌入网络问卷中的 4 个开放式问题的书面回复(“评论”)进行了定性描述性分析。
结果
在 400 名全科医生中,有 224 名(56%)留下了评论,这些评论被分为 4 个主要主题:全科医生实践压力增加、可能对患者造成伤害、文档记录变化和法律问题。全科医生认为,患者访问将给他们带来额外的工作,降低效率并增加倦怠感。参与者还认为,访问将增加患者的焦虑感并给患者安全带来风险。记录功能的变化包括记录的可信度降低和记录功能的变化。预期的法律问题包括对诉讼风险增加的担忧以及对全科医生如何管理患者和潜在第三方可能阅读的文档缺乏法律指导的担忧。
结论
本研究提供了有关英格兰全科医生对患者在线访问其健康记录的看法的及时信息。全科医生压倒性地对患者和他们的实践中访问的好处持怀疑态度。这些观点与其他国家(包括北欧国家和美国)在患者访问之前表达的观点相似。调查受到便利样本的限制,我们无法推断我们的样本代表了英格兰全科医生的意见。需要进行更广泛的定性研究,以了解英格兰患者在体验在线记录访问后的观点。最后,需要进一步研究以探索患者访问其记录对健康结果、临床医生工作量和文档记录变化的客观影响的衡量标准。