Healthcare Sciences and E-health, Dept Women's and Children's Health, Uppsala University, Sweden.
Informatics, School of Business Örebro University, Örebro, Sweden.
Stud Health Technol Inform. 2022 May 25;294:495-499. doi: 10.3233/SHTI220508.
An increasing number of countries are implementing patient access to electronic health records (EHR). However, EHR access for parents, children and adolescents presents ethical challenges of data integrity, and regulations vary across providers, regions, and countries. In the present study, we compare EHR access policy for parents, children and adolescents in four countries. Documentation from three areas: upper age limit of minors for which parents have access; age at which minors obtain access; and possibilities of access restriction and extension was collected from Sweden, Norway, Finland, and Estonia. Results showed that while all systems provided parents with automatic proxy access, age limits for its expiry differed. Furthermore, a lower minimum age than 18 for adolescent access was present in two of four countries. Differences between countries and potential implications for adolescents are discussed. We conclude that experiences of various approaches should be explored to promote the development of EHR regulations for parents, children and adolescents that increases safety, quality, and equality of care.
越来越多的国家正在实施患者获取电子健康记录（EHR）的权限。然而，对于父母、儿童和青少年的 EHR 访问存在数据完整性的伦理挑战，并且不同的提供者、地区和国家的规定也有所不同。在本研究中，我们比较了四个国家中父母、儿童和青少年的 EHR 访问政策。从瑞典、挪威、芬兰和爱沙尼亚三个领域收集了未成年人的父母访问的最高年龄限制；未成年人获得访问权的年龄；以及访问限制和扩展的可能性的文档。结果表明，虽然所有系统都为父母提供了自动代理访问，但自动代理访问的失效年龄限制有所不同。此外，在四个国家中有两个国家规定了比 18 岁更低的青少年访问最低年龄。讨论了国家之间的差异和对青少年的潜在影响。我们的结论是，应该探索各种方法的经验，以促进父母、儿童和青少年的 EHR 法规的制定，这些法规可以提高安全性、质量和护理的公平性。
