风湿云应用程序：一款用于管理中国风湿病患者的新型移动应用程序。

RheumCloud App: A Novel Mobile Application for the Management of Rheumatic Diseases Patients in China.

作者信息

Huang Can, Zhao Jiuliang, Tian Xinping, Wang Qian, Xu Dong, Li Mengtao, Zeng Xiaofeng

机构信息

Department of Rheumatology and Clinical Immunology, Chinese Academy of Medical Sciences and Peking Union Medical College; National Clinical Research Center for Dermatologic and Immunologic Diseases (NCRC-DID), Ministry of Science and Technology; State Key Laboratory of Complex Severe and Rare Diseases, Peking Union Medical College Hospital (PUMCH); Key Laboratory of Rheumatology and Clinical Immunology, Ministry of Education, Beijing 100730, China.

出版信息

Rheumatol Immunol Res. 2022 Dec 31;3(4):184-189. doi: 10.2478/rir-2022-0033. eCollection 2022 Dec.

DOI:10.2478/rir-2022-0033

PMID:36879841

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9984926/

Abstract

This review summarizes the history, function, application, and achievement of the RheumCloud App as a novel smartphone application. This App reflects the development of the Chinese Rheumatism Data Center (CRDC), which provides not only a technical platform for the database and registry of rheumatic diseases (RDs) in China, but also a close tie between Chinese rheumatologists and patients with RDs. Throughout the past decade, CRDC has successfully built the world's largest nationwide database for RDs. A total of 2074 tertiary referral centers consisting of 8051 rheumatologists participated in the registry. RheumCloud App, which is representative of the success of CRDC, has played a central role in supporting patient cohort registration, biosample collection, and patient education. Based on the data of the Rhuem-Cloud App, three national key research projects have been funded and a series of research papers have been published.

摘要

本综述总结了RheumCloud应用程序作为一款新型智能手机应用的历史、功能、应用及成果。该应用反映了中国风湿病数据中心（CRDC）的发展，它不仅为中国风湿病数据库和登记系统提供了技术平台，还紧密联系了中国风湿病学家和风湿病患者。在过去十年中，CRDC成功建立了世界上最大的全国性风湿病数据库。共有由8051名风湿病学家组成的2074个三级转诊中心参与了登记。代表CRDC成功的RheumCloud应用程序在支持患者队列登记、生物样本采集和患者教育方面发挥了核心作用。基于RheumCloud应用程序的数据，三项国家重点研究项目获得资助，一系列研究论文得以发表。