Huang Can, Zhao Jiuliang, Tian Xinping, Wang Qian, Xu Dong, Li Mengtao, Zeng Xiaofeng
Department of Rheumatology and Clinical Immunology, Chinese Academy of Medical Sciences and Peking Union Medical College; National Clinical Research Center for Dermatologic and Immunologic Diseases (NCRC-DID), Ministry of Science and Technology; State Key Laboratory of Complex Severe and Rare Diseases, Peking Union Medical College Hospital (PUMCH); Key Laboratory of Rheumatology and Clinical Immunology, Ministry of Education, Beijing 100730, China.
Rheumatol Immunol Res. 2022 Dec 31;3(4):184-189. doi: 10.2478/rir-2022-0033. eCollection 2022 Dec.
This review summarizes the history, function, application, and achievement of the RheumCloud App as a novel smartphone application. This App reflects the development of the Chinese Rheumatism Data Center (CRDC), which provides not only a technical platform for the database and registry of rheumatic diseases (RDs) in China, but also a close tie between Chinese rheumatologists and patients with RDs. Throughout the past decade, CRDC has successfully built the world's largest nationwide database for RDs. A total of 2074 tertiary referral centers consisting of 8051 rheumatologists participated in the registry. RheumCloud App, which is representative of the success of CRDC, has played a central role in supporting patient cohort registration, biosample collection, and patient education. Based on the data of the Rhuem-Cloud App, three national key research projects have been funded and a series of research papers have been published.
本综述总结了RheumCloud应用程序作为一款新型智能手机应用的历史、功能、应用及成果。该应用反映了中国风湿病数据中心（CRDC）的发展，它不仅为中国风湿病数据库和登记系统提供了技术平台，还紧密联系了中国风湿病学家和风湿病患者。在过去十年中，CRDC成功建立了世界上最大的全国性风湿病数据库。共有由8051名风湿病学家组成的2074个三级转诊中心参与了登记。代表CRDC成功的RheumCloud应用程序在支持患者队列登记、生物样本采集和患者教育方面发挥了核心作用。基于RheumCloud应用程序的数据，三项国家重点研究项目获得资助，一系列研究论文得以发表。
