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中国自闭症谱系障碍儿童家庭的直接和间接成本。

Direct and indirect costs for families of children with autism spectrum disorder in China.

作者信息

Zhao Yanan, Luo Yanan, Zhang Rong, Zheng Xiaoying

机构信息

Peking university, China.

Chinese Academy of Medical Sciences & Peking Union Medical College, china.

出版信息

Autism. 2023 Nov;27(8):2337-2347. doi: 10.1177/13623613231158862. Epub 2023 Mar 7.

Abstract

This is the first comprehensive national study to explore the direct and indirect costs for families of children with autism spectrum disorder in China. The increasing prevalence of autism spectrum disorder highlights a growing need for resources to provide care for families of children with autism spectrum disorder. The medical and nonmedical costs and parents' productivity loss have caused a serious burden on their families. Our objective is to estimate the direct and indirect costs for the families of children with autism spectrum disorder in China. The target population was parents of children with autism spectrum disorder. We analyzed the costs using cross-sectional data from a Chinese national family survey with children aged 2-6 years ( = 3236) who were clinically diagnosed with autism spectrum disorder. Family data from 30 provinces in China were obtained. Cost items included direct medical costs, direct nonmedical costs, and indirect costs. In this study, we found that the largest part of family costs for autism spectrum disorder are nonmedical costs and productivity loss. Autism spectrum disorder has imposed a huge economic burden on parents having children with autism spectrum disorder in China, who need more support than the current health care system provides.

摘要

这是中国第一项全面的全国性研究,旨在探讨自闭症谱系障碍儿童家庭的直接和间接成本。自闭症谱系障碍患病率的上升凸显了为自闭症谱系障碍儿童家庭提供照料所需资源的日益增长。医疗和非医疗成本以及父母的生产力损失给他们的家庭造成了沉重负担。我们的目标是估算中国自闭症谱系障碍儿童家庭的直接和间接成本。目标人群是自闭症谱系障碍儿童的父母。我们使用来自一项针对2至6岁临床诊断为自闭症谱系障碍儿童的中国全国家庭调查的横断面数据来分析成本。获取了中国30个省份的家庭数据。成本项目包括直接医疗成本、直接非医疗成本和间接成本。在本研究中,我们发现自闭症谱系障碍家庭成本的最大部分是非医疗成本和生产力损失。自闭症谱系障碍给中国有自闭症谱系障碍儿童的父母带来了巨大的经济负担,他们需要比当前医疗保健系统所提供的更多支持。

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