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患者-家庭照顾者在接受疾病方面的一致性/不一致性与家庭照顾者的预期性悲伤之间的关系。

The relationship between patient-family caregiver congruence/incongruence in acceptance of illness and family caregivers' anticipatory grief.

机构信息

School of Nursing and Rehabilitation, Cheeloo College of Medicine, Shandong University, Jinan, Shandong, China.

Shandong Cancer Hospital and Institute, Shandong First Medical University and Shandong Academy of Medical Sciences, Jinan, Shandong, China.

出版信息

Psychooncology. 2023 May;32(5):751-759. doi: 10.1002/pon.6121. Epub 2023 Mar 17.

Abstract

OBJECTIVE

Cancer is a family affair that negatively impacts the lives of patients and their family caregivers. This study takes a dyadic perspective to investigate the effect of patient-family caregiver illness acceptance congruence/incongruence on family caregivers' anticipatory grief (AG) and examine whether caregivers' resilience moderates the abovementioned relationship.

METHODS

For the study, 304 dyads of advanced lung cancer patients and their family caregivers from three tertiary hospitals in Jinan, Shandong Province, China were recruited. The data were analyzed using polynomial regressions and response surface analyses.

RESULTS

Family caregivers' AG was lower when patient-family caregiver illness acceptance was congruent rather than incongruent. Lower patient-caregiver illness acceptance congruence was associated with higher AG in family caregivers compared with higher illness acceptance congruence. Family caregivers reported significantly higher AG only if their illness acceptance was lower than that of their patients. In addition, caregivers' resilience moderated the effects of patient-caregiver illness acceptance congruence/incongruence on family caregivers' AG.

CONCLUSIONS

Patient-family caregiver illness acceptance congruence was beneficial to family caregivers' AG; resilience can be a protective factor for buffering the impact of illness acceptance incongruence on family caregivers' AG.

摘要

目的

癌症是一个会给患者及其家庭照顾者的生活带来负面影响的家庭事务。本研究采用对偶观点,探讨患者-家庭照顾者疾病接受一致性/不一致性对家庭照顾者预期悲伤(AG)的影响,并检验照顾者的韧性是否调节上述关系。

方法

本研究招募了来自中国山东省济南市三家三级医院的 304 对晚期肺癌患者及其家庭照顾者。使用多项式回归和响应面分析对数据进行分析。

结果

当患者-家庭照顾者疾病接受一致时,家庭照顾者的 AG 较低,而不一致时则较高。与较高的疾病接受一致性相比,较低的患者-照顾者疾病接受一致性与家庭照顾者的 AG 较高相关。只有当照顾者的疾病接受程度低于患者时,照顾者才会报告明显更高的 AG。此外,照顾者的韧性调节了患者-照顾者疾病接受一致性/不一致性对家庭照顾者 AG 的影响。

结论

患者-家庭照顾者疾病接受一致性有利于家庭照顾者的 AG;韧性可以作为缓冲疾病接受不一致对家庭照顾者 AG 影响的保护因素。

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