囊性纤维化患者的口腔护理考量：一项横断面定性研究
Oral care considerations for people with cystic fibrosis: a cross-sectional qualitative study.
作者信息
Coffey Niamh, O' Leary Fiona, Burke Francis, Plant Barry, Roberts Anthony, Hayes Martina
机构信息
Department of Restorative Dentistry, Cork University Dental School and Hospital, University College Cork, Cork, T12 E8YV, Ireland.
Adult Cystic Fibrosis Centre, Cork University Hospital, Wilton, Cork, T12 DFK4, Ireland.
出版信息
BDJ Open. 2023 Mar 11;9(1):11. doi: 10.1038/s41405-023-00136-w.
OBJECTIVES
To investigate the attitudes of adults with Cystic Fibrosis (CF) towards dental attendance and any perceived barriers to treatment.
METHODS
A cross sectional survey in the form of a structured, anonymous questionnaire was used to obtain information regarding adults with CF's feelings towards dentists and dental treatment. The final version of the questionnaire was based on a collaborative effort between researchers at Cork University Dental School and Hospital and Cystic Fibrosis (CF) patient advocates from CF Ireland. Participants were recruited via CF Ireland's mailing list and social media channels. The responses underwent descriptive statistical analysis and inductive thematic analysis.
RESULTS
A total of 71 people (33 Male: 38 Female) over the age of 18 living with CF in the Republic of Ireland responded to the survey. 54.9% of respondents were unhappy with their teeth. 63.4% felt that CF had an impact on oral health. 33.8% were anxious about attending their dentist. Respondents believed that CF has impacted on their oral health due to the medications and dietary requirements involved, as well as tiredness and other side effects of CF. Reasons for being anxious about attending the dentist included cross infection concerns, issues with the dentist, with tolerating treatment, and with the teeth themselves. Respondents wanted dentists to be aware of the practicalities of dental treatment for people with CF, especially their discomfort with lying back. They also want the dentist to be aware of the impact that their medication, treatment and diet has on their oral health.
CONCLUSIONS
Over one third of adults with CF reported anxiety about attending the dentist. Reasons for this included fear, embarrassment, cross infection concerns and problems with treatment, especially being in the supine position. Adults with CF want dentists to be aware of the impact that CF can have upon dental treatment and oral health care.
目的
调查成年囊性纤维化（CF）患者对看牙就诊的态度以及任何察觉到的治疗障碍。
方法
采用结构化匿名问卷形式的横断面调查，以获取有关成年CF患者对牙医及牙科治疗感受的信息。问卷的最终版本是科克大学牙科学院和医院的研究人员与爱尔兰囊性纤维化（CF）患者权益倡导者共同努力的成果。通过爱尔兰CF组织的邮件列表和社交媒体渠道招募参与者。对回复进行描述性统计分析和归纳主题分析。
结果
爱尔兰共和国共有71名18岁以上的成年CF患者对调查做出了回应（33名男性，38名女性）。54.9%的受访者对自己的牙齿不满意。63.4%的人认为CF对口腔健康有影响。33.8%的人看牙医时感到焦虑。受访者认为，CF因其涉及的药物和饮食要求以及CF带来的疲劳和其他副作用而影响了他们的口腔健康。看牙医感到焦虑的原因包括对交叉感染的担忧、与牙医相关的问题、对耐受治疗的问题以及牙齿本身的问题。受访者希望牙医了解CF患者牙科治疗的实际情况，特别是他们对仰卧的不适。他们还希望牙医了解他们的药物、治疗和饮食对口腔健康的影响。
结论
超过三分之一的成年CF患者表示看牙医时感到焦虑。原因包括恐惧、尴尬、对交叉感染的担忧以及治疗问题，尤其是仰卧姿势的问题。成年CF患者希望牙医了解CF对牙科治疗和口腔保健可能产生的影响。
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