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Factors affecting the quality of life of family caregivers of patients with heart failure: A cross-sectional study.影响心力衰竭患者家庭照顾者生活质量的因素:一项横断面研究。
Medicine (Baltimore). 2022 Sep 2;101(35):e30042. doi: 10.1097/MD.0000000000030042.
2
Clinicians for CARE: A Systematic Review and Meta-Analysis of Interventions to Support Caregivers of Patients With Heart Disease.Clinicians for CARE:支持心脏病患者照顾者的干预措施的系统评价和荟萃分析。
J Am Heart Assoc. 2021 Dec 21;10(24):e019706. doi: 10.1161/JAHA.120.019706. Epub 2021 Dec 7.
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Cumulative burden of clinically significant aortic stenosis in community-dwelling older adults.社区居住的老年人群中具有临床意义的主动脉瓣狭窄的累积负担。
Heart. 2021 Sep;107(18):1493-1502. doi: 10.1136/heartjnl-2021-319025. Epub 2021 Jun 2.
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Real-world patient- and caregiver-reported outcomes in advanced breast cancer.晚期乳腺癌患者及照护者报告的真实世界结局
Curr Oncol. 2018 Aug;25(4):e282-e290. doi: 10.3747/co.25.3765. Epub 2018 Aug 14.
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Psychometric Evaluation of Kingston Caregiver Stress Scale.金斯敦照顾者压力量表的心理测量评估。
Clin Gerontol. 2017 Jul-Sep;40(4):268-280. doi: 10.1080/07317115.2017.1313349. Epub 2017 Apr 5.
6
Evidence for stroke family caregiver and dyad interventions: a statement for healthcare professionals from the American Heart Association and American Stroke Association.中风家庭护理者及二元干预的证据:美国心脏协会和美国中风协会给医疗保健专业人员的声明
Stroke. 2014 Sep;45(9):2836-52. doi: 10.1161/STR.0000000000000033. Epub 2014 Jul 17.
7
Aortic stenosis in the elderly: disease prevalence and number of candidates for transcatheter aortic valve replacement: a meta-analysis and modeling study.老年人主动脉瓣狭窄:经导管主动脉瓣置换术候选人群的疾病患病率:一项荟萃分析和建模研究。
J Am Coll Cardiol. 2013 Sep 10;62(11):1002-12. doi: 10.1016/j.jacc.2013.05.015. Epub 2013 May 30.
8
Five-year clinical and economic outcomes among patients with medically managed severe aortic stenosis: results from a Medicare claims analysis.药物治疗的重度主动脉瓣狭窄患者的五年临床和经济结局:一项医疗保险索赔分析结果
Circ Cardiovasc Qual Outcomes. 2012 Sep 1;5(5):697-704. doi: 10.1161/CIRCOUTCOMES.112.966002. Epub 2012 Sep 4.
9
Evidence for the validity of the American Medical Association's caregiver self-assessment questionnaire as a screening measure for depression.美国医学协会护理人员自我评估问卷作为抑郁症筛查工具有效性的证据。
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经导管主动脉瓣置换术后,照顾者压力得到改善并持续缓解。

Caregiver Stress Is Improved and Sustained Following Transcatheter Aortic Valve Replacement.

作者信息

Elzeneini Mohammed, Osman Alfaroug, Bright Khadija, Yang Shuang, Guo Yi, Jeng Eric, Shah Khanjan B

机构信息

Division of Cardiovascular Medicine, University of Florida, Gainesville, Florida, USA.

Department of Health Outcomes and Biomedical Informatics, University of Florida, Gainesville, Florida, USA.

出版信息

Palliat Med Rep. 2023 Feb 24;4(1):56-58. doi: 10.1089/pmr.2022.0064. eCollection 2023.

DOI:10.1089/pmr.2022.0064
PMID:36910451
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9994443/
Abstract

BACKGROUND

Little is known about the impact of symptomatic aortic stenosis and subsequent transcatheter aortic valve replacement (TAVR) on stress and health for the caregiver. In this prospective cohort study, we measured caregiver stress before and after TAVR.

METHODS

We interviewed 34 primary caregivers for patients undergoing outpatient TAVR at an academic institution. Caregiver stress was measured using the Kingston Caregiver Stress Scale (KCSS) and the Caregiver Self-Assessment Questionnaire (CSAQ) before TAVR and at one and six months after. Mean scores were compared pre- and post-TAVR using the Wilcoxon signed-rank test.

RESULTS

There was significant improvement in KCSS caregiver stress at one month that was sustained at six months post-TAVR (mean change -1.91 ± 2.50 for six months, -value 0.01). This was primarily driven by improvement in caregiving issues rather than family or financial issues. There was also significant improvement in CSAQ self-assessed health/illness at one and six months (mean change -2.78 ± 4.01 for six months, -value 0.016).

CONCLUSIONS

Our findings support further investigation of caregiver outcomes in shared decision making before TAVR.

摘要

背景

关于有症状的主动脉瓣狭窄及随后的经导管主动脉瓣置换术(TAVR)对照顾者压力和健康的影响,目前所知甚少。在这项前瞻性队列研究中,我们测量了TAVR前后照顾者的压力。

方法

我们对一家学术机构中接受门诊TAVR治疗患者的34名主要照顾者进行了访谈。在TAVR前、术后1个月和6个月,使用金斯顿照顾者压力量表(KCSS)和照顾者自我评估问卷(CSAQ)测量照顾者的压力。使用Wilcoxon符号秩检验比较TAVR前后的平均得分。

结果

术后1个月KCSS照顾者压力有显著改善,并在TAVR后6个月持续存在(6个月时平均变化为-1.91±2.50,P值为0.01)。这主要是由照顾问题的改善而非家庭或财务问题驱动的。在术后1个月和6个月,CSAQ自我评估的健康/疾病状况也有显著改善(6个月时平均变化为-2.78±4.01,P值为0.016)。

结论

我们的研究结果支持在TAVR前进一步研究共同决策中照顾者的结局。