Joslin Diabetes Center, Harvard Medical School, Boston, MA, USA.
The Children's Hospital at Montefiore, Albert Einstein College of Medicine, Bronx, NY, USA.
J Diabetes Sci Technol. 2024 Nov;18(6):1452-1459. doi: 10.1177/19322968231159411. Epub 2023 Mar 13.
We added items relevant to continuous glucose monitoring (CGM) to the Diabetes Family Conflict Scale (DFC), Diabetes Family Responsibility Questionnaire (DFR), and Blood Glucose Monitoring Communication Questionnaire (GMC) and evaluated the psychometric properties of the updated surveys.
Youth with type 1 diabetes who recently started CGM and their parents completed the updated surveys and additional psychosocial surveys. Medical data were collected from self-reports and review of the medical record.
Youth (N = 114, 49% adolescent girls) were aged 13.3 ± 2.7 years and had mean glycated hemoglobin (HbA1c) 7.9 ± 0.9%; 87% of them used pump therapy. The updated surveys demonstrated high internal consistency (DFC youth: α = .91, parent: α = .81; DFR youth: α = .88, parent: α = .93; and GMC youth: α = .88, parent: α = .86). Higher youth and parent DFC scores (more diabetes-specific family conflict) and GMC scores (more negative affect related to glucose monitoring) were associated with more youth and parent depressive symptoms ( = 0.28-0.60, ≤ .003), more diabetes burden ( = 0.31-0.71, ≤ .0009), more state anxiety ( = 0.24 to = 0.46, ≤ .01), and lower youth quality of life ( = -0.29 to -0.50, ≤ .002). Higher youth and parent DFR scores (more parent involvement in diabetes management) were associated with younger youth age (youth: = -0.76, < .0001; parent: = -0.81, < .0001) and more frequent blood glucose monitoring (youth: = 0.27, = .003; parent: = 0.35, = .0002).
The updated DFC, DFR, and GMC surveys maintain good psychometric properties. The addition of CGM items expands the relevance of these surveys for youth with type 1 diabetes who are using CGM and other diabetes technologies.
我们在糖尿病家庭冲突量表（DFC）、糖尿病家庭责任问卷（DFR）和血糖监测沟通问卷（GMC）中添加了与连续血糖监测（CGM）相关的项目，并评估了更新后的调查的心理测量特性。
最近开始使用 CGM 的 1 型糖尿病青少年及其父母完成了更新后的调查和其他心理社会调查。医疗数据来自自我报告和病历审查。
青少年（N=114，49%为少女）年龄为 13.3±2.7 岁，平均糖化血红蛋白（HbA1c）为 7.9±0.9%；其中 87%使用胰岛素泵治疗。更新后的调查显示出较高的内部一致性（DFC 青少年：α=0.91，父母：α=0.81；DFR 青少年：α=0.88，父母：α=0.93；GMC 青少年：α=0.88，父母：α=0.86）。较高的青少年和父母 DFC 评分（更多与糖尿病相关的家庭冲突）和 GMC 评分（与血糖监测相关的更多负面情绪）与青少年和父母更多的抑郁症状（=0.28-0.60，≤0.003）、更多的糖尿病负担（=0.31-0.71，≤0.0009）、更多的状态焦虑（=0.24 至 0.46，≤0.01）和青少年生活质量下降（=0.29 至 0.50，≤0.002）有关。较高的青少年和父母 DFR 评分（更多的父母参与糖尿病管理）与青少年年龄较小（青少年：=0.76，<0.0001；父母：=0.81，<0.0001）和更频繁的血糖监测（青少年：=0.27，=0.003；父母：=0.35，=0.0002）有关。
更新后的 DFC、DFR 和 GMC 调查保持了良好的心理测量特性。添加 CGM 项目扩展了这些调查对于正在使用 CGM 和其他糖尿病技术的 1 型糖尿病青少年的相关性。
