Alqabasani Mohammed, Lasso Andrea, Kilty Shaun
Department of Otolaryngology-Head and Neck Surgery, University of Ottawa - 501 Smyth Rd, Ottawa, ON, Canada.
Ottawa Hospital Research Institute, 1053 Carling Ave, Ottawa, Canada.
Allergy Asthma Clin Immunol. 2023 Mar 13;19(1):22. doi: 10.1186/s13223-023-00766-7.
Patients widely use medical identification (ID) to indicate their food and drug allergies, and chronic medical conditions. One chronic condition for which patients are recommended to use a form of medical ID is Aspirin-Exacerbated Respiratory Disease (AERD), a disease characterized by the presence of asthma, chronic rhinosinusitis with nasal polyps and sensitivity to aspirin and other COX-1 inhibitors, including nonsteroidal anti-inflammatory drugs (NSAIDs). The uptake of medical ID use in AERD is unknown and has not been widely studied in this population.
We conducted a cross-sectional survey study to measure the perception of the need to use a medical ID and its use by patients with AERD internationally.
245 members of an online AERD support group completed an online survey. The majority (80%, n = 198) of the participants did not use any form of medical ID. The participants reported that the lack of knowledge and awareness about the importance of using a medical ID was the most common reason for not using it.
This international survey found that the majority of the AERD patient respondents did not use a medical ID. The most common reasons for nonuse were not knowing that it is recommended for their condition and that the patients did not consider it necessary. The results highlight the need for further patient and health care provider education.
患者广泛使用医疗身份标识（ID）来表明他们的食物和药物过敏情况以及慢性疾病状况。对于一种慢性疾病，建议患者使用某种形式的医疗身份标识，即阿司匹林加重性呼吸道疾病（AERD），这是一种以哮喘、伴有鼻息肉的慢性鼻窦炎以及对阿司匹林和其他环氧化酶-1（COX-1）抑制剂（包括非甾体抗炎药（NSAIDs））敏感为特征的疾病。AERD患者使用医疗身份标识的情况尚不清楚，且在该人群中尚未得到广泛研究。
我们开展了一项横断面调查研究，以衡量国际上AERD患者对使用医疗身份标识的必要性的认知及其使用情况。
一个在线AERD支持小组的245名成员完成了一项在线调查。大多数参与者（80%，n = 198）未使用任何形式的医疗身份标识。参与者报告称，对使用医疗身份标识的重要性缺乏了解和认识是不使用它的最常见原因。
这项国际调查发现，大多数AERD患者受访者未使用医疗身份标识。不使用的最常见原因是不知道针对他们的病情建议使用该标识，以及患者认为没有必要使用。结果凸显了对患者和医疗服务提供者进行进一步教育的必要性。
