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针对全职使用轮椅或踏板车的多发性硬化症患者的个性化跌倒干预在线交付:一项试点研究。

Online Delivery of the Individualized Reduction of Falls Intervention for Persons With Multiple Sclerosis Who Use a Wheelchair or Scooter Full-time: A Pilot Study.

作者信息

McArthur Amy Roder, Peterson Elizabeth Walker, Sosnoff Jacob, Backus Deborah, Yarnot Rebecca, Abou Libak, Kish Jacqueline, Steinkellner Sydney, Sandhu Arman, Rice Laura

机构信息

Department of Disability and Human Development (ARMA, JK), University of Illinois Chicago, Chicago, IL, USA.

Department of Occupational Therapy (ARMA, EWP), College of Applied Health Sciences, University of Illinois Chicago, Chicago, IL, USA.

出版信息

Int J MS Care. 2023 Mar-Apr;25(2):82-90. doi: 10.7224/1537-2073.2022-044. Epub 2023 Mar 9.

Abstract

BACKGROUND

People with multiple sclerosis (MS) who use a wheelchair or scooter full-time fall frequently; however, fall prevention programming that meets the unique needs of this population is limited. This study examined the preliminary efficacy of a group-based online fall prevention and management intervention designed specifically for people with MS.

METHODS

This pre/post intervention, mixed-methods study included people with MS who used a wheelchair or scooter full-time, experienced at least 1 fall within the past year, and transferred independently or with minimal or moderate assistance. Participants engaged in a 6-week, online, individualized, multicomponent fall prevention and management intervention: Individualized Reduction of Falls-Online (iROLL-O).

RESULTS

No statistically significant change in fall incidence occurred after iROLL-O. However, fear of falling significantly decreased ( < .01) and knowledge related to fall management ( = .04) and fall prevention and management ( = .03) significantly improved. Qualitative results indicated that participants valued the opportunity for peer learning and iROLL-O's attention to diverse influences on fall risk.

CONCLUSIONS

This study is the first to examine the preliminary efficacy of an online fall prevention and management intervention for people with MS who use a wheelchair or scooter full-time. iROLL-O has promise, and participants found it valuable. Further efforts are needed to retain iROLL-O participants with lower confidence and functional mobility, and more research is needed to investigate the impact of the intervention on key outcomes over time.

摘要

背景

长期使用轮椅或踏板车的多发性硬化症(MS)患者经常跌倒;然而,满足这一人群独特需求的跌倒预防计划有限。本研究调查了一项专门为MS患者设计的基于小组的在线跌倒预防与管理干预措施的初步疗效。

方法

这项干预前后的混合方法研究纳入了长期使用轮椅或踏板车、在过去一年中至少跌倒过1次、能够独立转移或在最少或适度协助下转移的MS患者。参与者参与了一项为期6周的在线、个性化、多成分的跌倒预防与管理干预:在线个性化跌倒减少(iROLL-O)。

结果

iROLL-O实施后,跌倒发生率没有统计学上的显著变化。然而,跌倒恐惧显著降低(<.01),与跌倒管理相关的知识(=.04)以及跌倒预防与管理相关的知识(=.03)显著改善。定性结果表明,参与者重视同伴学习的机会以及iROLL-O对跌倒风险多种影响因素的关注。

结论

本研究首次调查了针对长期使用轮椅或踏板车的MS患者的在线跌倒预防与管理干预措施的初步疗效。iROLL-O有前景,参与者认为它有价值。需要进一步努力留住信心较低和功能活动能力较差的iROLL-O参与者,还需要更多研究来调查该干预措施随时间推移对关键结果的影响。

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本文引用的文献

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Pilot Study of a Fall Prevention and Management Intervention Program for People With Multiple Sclerosis Who Use a Wheelchair or Scooter Full-Time.
Arch Rehabil Res Clin Transl. 2022 Aug 6;4(4):100225. doi: 10.1016/j.arrct.2022.100225. eCollection 2022 Dec.
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