Department of Dermatology, University Hospital Carl Gustav Carus, Technical University, Dresden, Germany.
Section of Occupational Dermatology, Department of Dermatology, Ruprecht-Karls-University, Heidelberg, Germany.
J Eur Acad Dermatol Venereol. 2023 Jul;37(7):1396-1405. doi: 10.1111/jdv.19055. Epub 2023 Apr 27.
Chronic hand eczema (CHE) is a very common skin disease among the European population. It causes itch and pain and, in more severe cases, seriously impairs hand functioning at work and in private life.
To explore perspectives of people with lived experience on CHE-related problems, wishes and goals.
Following a qualitative approach, we conducted topic-guided interviews in five European countries and applied template analysis to identify recurrent themes among patients with CHE.
We interviewed 60 patients in seven outpatient dermatological and occupational medicine clinics in Croatia, Denmark, Germany, the Netherlands and Spain. Five main themes were identified: (1) knowledge about the disease and its course, (2) preventive behaviour, (3) hand eczema therapy, (4) impact on everyday life and (5) attitudes towards CHE and healthcare. Participants did not feel well informed about CHE, especially about causes, triggers and treatment options. Preventive measures were experienced as more or less effective but also cumbersome. Experiences with therapy were diverse. Treatment satisfaction depended on the results and on the perceived support from the treatment teams. Participants found it important to be taken seriously, to receive practical advice, to try out additional treatments or examinations, find new hope and have occupational perspectives. They wished that others could better understand the physical and emotional burden of CHE. Patient support groups were not mentioned. Participants found it important to learn to take care of themselves and accept life with CHE.
Due to its annoying symptoms, high visibility and impaired functioning at work and in private life, CHE has a high emotional and social impact. Some people may require support to learn coping with CHE and its prevention. Patients wish for information about causes and triggers. They value physicians who listen to them and keep looking for solutions.
慢性手部湿疹（CHE）是欧洲人群中一种非常常见的皮肤病。它会引起瘙痒和疼痛，在更严重的情况下，严重影响工作和私人生活中的手部功能。
探讨有手部湿疹患病经历的人群对相关问题、愿望和目标的看法。
采用定性方法，我们在五个欧洲国家进行了主题引导访谈，并应用模板分析来识别手部湿疹患者的反复出现的主题。
我们在克罗地亚、丹麦、德国、荷兰和西班牙的七家门诊皮肤科和职业医学诊所采访了 60 名手部湿疹患者。确定了五个主要主题：（1）对疾病及其病程的了解，（2）预防行为，（3）手部湿疹治疗，（4）对日常生活的影响，（5）对手部湿疹和医疗保健的态度。参与者对手部湿疹的了解并不充分，特别是对病因、诱因和治疗选择。预防措施被认为或多或少有效，但也很麻烦。治疗体验各不相同。治疗满意度取决于结果和治疗团队的感知支持。参与者认为重要的是得到认真对待，获得实用建议，尝试额外的治疗或检查，找到新的希望和职业前景。他们希望其他人能够更好地理解手部湿疹的身体和情感负担。患者支持团体未被提及。参与者认为重要的是学会照顾自己并接受手部湿疹的生活。
由于其烦人的症状、高可见度以及工作和私人生活中功能受损，手部湿疹具有很高的情感和社会影响。有些人可能需要支持来学习应对手部湿疹及其预防。患者希望了解病因和诱因的信息。他们重视倾听他们的医生，并不断寻找解决方案。
