Graham LeRoy, Hart Mary, Stinson Michael, Moise Rhoda, Mitchell Lynda, Winders Tonya A, Gardner Donna D
Allergy and Asthma Network, 10304 Eaton Place, Suite 100, Fairfax, VA, 22030, USA.
East Point First Mallalieu UMC, East Point, GA, USA.
Res Involv Engagem. 2023 Mar 24;9(1):13. doi: 10.1186/s40900-023-00428-3.
In response to racial inequity in asthma, asthma-related research among diverse patients is vital. However, people from historically marginalized groups are underrepresented in clinical and patient-centered outcomes research (PCOR). The "Black People Like Me" (BPLM) virtual conference series was developed to: (1) engage Black patients with asthma and their caregivers in education and discussions about asthma, and (2) encourage involvement in PCOR. Education about COVID-19 and COVID-19 vaccination was also incorporated.
The Project Advisory Group consisting of Black patients, clergy, physicians, and a program evaluator met monthly to develop BPLM. The program consisted of free one-hour virtual sessions held monthly for 6 months. BPLM was promoted through the Allergy & Asthma Network website, emails, social media, and personal contacts with a recruitment goal of ≥ 100 Black patients with asthma or caregivers. Program evaluations, interactive polling questions during each session, and participant pre- and post-session tests were conducted.
Sessions averaged 658 participants including Black patients, family members, caregivers, Black clergy, health care providers, and other concerned community. Overall, 77% of participants strongly agreed with satisfaction with the sessions. Pre- and post-tests demonstrated that participants exhibited growth in knowledge regarding asthma risk, PCOR, and PCOR research opportunities for patients, exhibited preexisting and sustained knowledge regarding COVID-19 vaccination and side effects, and demonstrated an increased sense of empowerment during healthcare visits.
BPLM demonstrated that a virtual platform can successfully engage Black communities. Incorporating clergy and religious organizations was critical in developing the trust of the Black community towards BPLM.
为应对哮喘领域的种族不平等问题，针对不同患者群体开展哮喘相关研究至关重要。然而，在临床研究和以患者为中心的结局研究（PCOR）中，历史上处于边缘地位的群体代表性不足。“像我这样的黑人”（BPLM）虚拟会议系列的开发目的是：（1）让患有哮喘的黑人患者及其护理人员参与有关哮喘的教育和讨论，（2）鼓励他们参与PCOR。同时还纳入了关于新冠病毒病（COVID-19）和COVID-19疫苗接种的教育内容。
由黑人患者、神职人员、医生和项目评估人员组成的项目咨询小组每月开会，制定BPLM。该项目包括为期6个月、每月举行一次的免费一小时虚拟会议。通过过敏与哮喘网络网站、电子邮件、社交媒体以及个人联系来推广BPLM，招募目标是≥100名患有哮喘的黑人患者或护理人员。进行了项目评估、每次会议期间的互动投票问题以及参与者会前和会后测试。
各场会议平均有658名参与者，包括黑人患者、家庭成员、护理人员、黑人神职人员、医疗保健提供者和其他相关社区成员。总体而言，77%的参与者对会议表示非常满意。会前和会后测试表明，参与者在哮喘风险、PCOR以及患者的PCOR研究机会方面的知识有所增长，对COVID-19疫苗接种和副作用有预先存在且持续的了解，并且在就医过程中的自主意识有所增强。
BPLM表明虚拟平台能够成功地让黑人社区参与进来。纳入神职人员和宗教组织对于建立黑人社区对BPLM的信任至关重要。
