National Rehabilitation Center for Neuromuscular Diseases, 8000, Aarhus C, Denmark.
Department of Public Health, Aarhus University, 8000, Aarhus C, Denmark.
Neurodegener Dis Manag. 2023 Jun;13(3):161-175. doi: 10.2217/nmt-2022-0024. Epub 2023 Mar 30.
Living with a neuromuscular disease often leads to a need for specialized rehabilitation due to the complexity and progression of the diseases. To investigate cross-sectoral collaboration on rehabilitation for patients with neuromuscular diseases among hospital professionals to inform future targeted rehabilitation services. The design was qualitative using the interpretive description methodology and the theoretical lens of symbolic interactionism. Ethnographic fieldwork was conducted, and 50 hospital professionals included, 19 of whom were interviewed. The results emphasize the importance of relations when collaborating across sectors. The professionals acted and made choices in relation to dilemmas and influences of diagnosis and progression, professional demarcations in multiprofessional teams, and cross-sectoral collaboration toward a mutual goal.
患有神经肌肉疾病的患者常常需要专业的康复治疗，因为疾病的复杂性和进展性。为了调查医院专业人员在神经肌肉疾病患者康复方面的跨部门合作情况，以为未来有针对性的康复服务提供信息。本研究采用定性设计，使用解释性描述方法和符号互动论的理论视角。进行了民族志实地调查，共纳入 50 名医院专业人员，其中 19 人接受了采访。研究结果强调了跨部门合作时关系的重要性。专业人员在面对和做出决策时，会受到诊断和进展的影响、多专业团队中的专业分工以及跨部门合作以实现共同目标等因素的影响。
