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挪威儿科康复中心认为他们在脑性视觉障碍方面的能力有限。

Norwegian paediatric habilitation centres judge their own competence on cerebral visual impairment as limited.

机构信息

Department of Education, University of Agder, Kristiansand, Norway.

Norwegian Quality and Surveillance Registry for Cerebral Palsy (NorCP), Vestfold Hospital Trust, Tønsberg, Norway.

出版信息

Acta Paediatr. 2023 Jul;112(7):1530-1536. doi: 10.1111/apa.16778. Epub 2023 Apr 7.

Abstract

AIM

Cerebral visual impairment (CVI), a frequently occurring functional impairment in children with neurodevelopmental disorders, leads to communicative, social and academic challenges. In Norway, children with neurodevelopmental disorders are assessed at paediatric habilitation centres. Our aims were to explore how CVI is identified, how paediatric habilitation centres assess their CVI competence and the reported prevalence of CVI among children with cerebral palsy.

METHODS

An electronic questionnaire was sent to all 19 Norwegian paediatric habilitation centre leaders in January 2022. The results were analysed quantitatively and qualitatively. The prevalence of CVI among children with cerebral palsy was estimated using register-based data.

RESULTS

The questionnaire was answered by 17. Only three judged their habilitation centre as having sufficient competence on CVI. None of the centres used screening questionnaires systematically, and 11 reported that CVI assessment was not good enough. Awareness that a child may have CVI typically occurred during examinations for other diagnoses. The prevalence of CVI among children with cerebral palsy was only 8%, while CVI status was unknown in 33%.

CONCLUSION

Better knowledge and assessment of CVI at Norwegian paediatric habilitation centres are needed. CVI appears to be often overlooked in children with neurodevelopmental disorders.

摘要

目的

脑视觉障碍(CVI)是神经发育障碍儿童中常见的功能障碍,导致沟通、社交和学习方面的挑战。在挪威,神经发育障碍儿童在儿科康复中心接受评估。我们的目的是探讨如何识别 CVI,儿科康复中心如何评估其 CVI 能力,以及脑瘫儿童中 CVI 的报告患病率。

方法

2022 年 1 月,向挪威所有 19 个儿科康复中心的负责人发送了电子问卷。结果进行了定量和定性分析。使用基于登记的数据估计脑瘫儿童中 CVI 的患病率。

结果

问卷由 17 人回答。只有三人认为他们的康复中心在 CVI 方面有足够的能力。没有一个中心系统地使用筛查问卷,11 个中心报告说 CVI 评估不够好。通常是在为其他诊断进行检查时才意识到孩子可能有 CVI。脑瘫儿童中 CVI 的患病率仅为 8%,而 33%的儿童的 CVI 状况未知。

结论

需要在挪威儿科康复中心提高对 CVI 的认识和评估。在神经发育障碍儿童中,CVI 似乎经常被忽视。

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