Psychopathology and Health Processes Laboratory, Paris Cité University, Boulogne Billancourt, France.
Adolescents and Young Adults Unit, Curie Institute, Paris, France.
J Adolesc Young Adult Oncol. 2023 Dec;12(6):879-889. doi: 10.1089/jayao.2022.0176. Epub 2023 Mar 30.
The appreciation of peer support can vary from one country to another due to the cultural and relational differences. This study explores what perceptions French adolescents and young adults (AYAs) in post-treatment for cancer have of the place of sick peers during their treatment and what can make barriers to meet them. A semistructured interview has been proposed 6 months after the end of cancer treatments. A thematic analysis has been conducted to highlight the major themes and subthemes identified through the participants' discourses. Twelve AYAs (mean age 23 y.o., standard deviation = 2.8; min = 19; max = 26) from two French cancer centers were interviewed. Five major themes were identified, but only two were presented in this article: the place of peers and the impact of coronavirus disease 2019 (COVID-19) epidemic on AYA facilities. AYA peers with cancer major theme demonstrated that meeting sick peers has benefits (e.g., identification, understanding, support, feeling of normalcy) but also has disadvantages (e.g., negative emotional influence). The benefits of peer-to-peer meetings seem to outweigh the disadvantages. Nevertheless, AYAs can face social barriers to this kind of relationship (e.g., fatigue, need to focus on oneself, confrontation to cancer and negative events, feeling of unnatural meeting). Finally, patients' encounters and the normal functioning of AYA facilities have been hampered by the COVID-19 pandemic. Even if AYA services systematically suggest a meeting with other sick peers, it is important to reiterate this proposal since the needs can evolve over time. It can also be interesting to propose places of life outside the hospital to make the encounters more comfortable and natural for AYAs. Clinical Trial Registration number: NCT03964116.
由于文化和人际关系的差异,同伴支持的意义在不同国家可能有所不同。本研究探讨了法国癌症治疗后青少年和年轻人(AYA)对患病同伴在治疗期间的作用的看法,以及可能阻碍他们见面的因素。在癌症治疗结束后 6 个月提出了半结构化访谈。通过对参与者的论述进行主题分析,突出了确定的主要主题和子主题。来自法国两家癌症中心的 12 名 AYA(平均年龄 23 岁,标准差=2.8;最小=19;最大=26)接受了访谈。确定了五个主要主题,但本文仅介绍了其中两个:同伴的地位和 2019 冠状病毒病(COVID-19)疫情对 AYA 设施的影响。AYA 癌症同伴的主要主题表明,与患病同伴见面有好处(例如,认同、理解、支持、正常感),但也有坏处(例如,负面情绪影响)。同伴间见面的好处似乎超过了坏处。然而,AYA 可能会面临这种关系的社会障碍(例如,疲劳、需要关注自己、与癌症和负面事件的对抗、不自然的会面感)。最后,COVID-19 大流行阻碍了患者的相遇和 AYA 设施的正常运作。即使 AYA 服务系统地建议与其他患病同伴见面,也很重要的是要重申这一建议,因为随着时间的推移,需求可能会发生变化。提议在医院以外的生活场所进行会面,也可以使 AYA 更加舒适和自然。临床试验注册号:NCT03964116。