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医疗保健专业人员在高科技环境中为自闭症谱系障碍儿童进行手术时的体验。

Healthcare professionals' experiences of situations during a procedure with a child with autism spectrum disorder in the high-technology environment.

机构信息

CHILD Research Group, Nursing Department, School of Health and Welfare, Jönköping University, Jönköping, Sweden.

CHILD Research Group, Department of Natural Science and Biomedicine, School of Health and Welfare, Jönköping University, Jönköping, Sweden.

出版信息

Child Care Health Dev. 2023 Nov;49(6):1087-1095. doi: 10.1111/cch.13119. Epub 2023 Apr 3.

DOI:10.1111/cch.13119
PMID:37009780
Abstract

BACKGROUND

High technological environments can be challenging for children with autism spectrum disorders (ASD), because they can be sensitive to new environments, new faces and changes in daily routines. Those children are frequent visitors in those settings, and due to their heightened healthcare needs and their comorbidities, it could constitute a challenge for healthcare professionals to encounter those children. Exploring the healthcare professionals' experiences can contribute to facilitate the procedure for a child with ASD.

METHOD

A qualitative descriptive retrospective design with a critical incident technique has been used to capture the situations. Twenty healthcare professionals were interviewed about situations affecting the procedure in the high-technology environments, defined as anaesthesia and radiology departments.

RESULT

The findings revealed both favourable situations and unfavourable situations affecting the procedure in the high-technology environment. The situations described by the healthcare professionals often involved their interactions with the child and the parents. The interactions were influenced by the parents' attitudes to the procedure and also the healthcare professionals and the parents' different expectations on the procedure. Other experiences described by the healthcare professionals were the unpredictability in different situations. Those situations were related to the child's unpredictable behaviour in those environments and also to the unpredictable effect of premedication provided to the child. Moreover, the result revealed the organizational prerequisites for facilitating a procedure, such as not feeling any time pressure when leading a child through a procedure.

CONCLUSIONS

Interactions between healthcare professionals, children with ASD and parents in the high-technology environment are complex. Unpredictability characterizes situations when leading a child with ASD through a procedure. This place demands on the healthcare professional, the environment and the organization.

摘要

背景

高科技环境对自闭症谱系障碍(ASD)儿童来说具有挑战性,因为他们对新环境、新面孔和日常生活的变化敏感。这些孩子经常光顾这些场所,由于他们的医疗需求较高,且常伴有多种并发症,这可能对医疗保健专业人员来说是一个挑战,需要他们具备应对这些孩子的能力。探索医疗保健专业人员的经验可以促进 ASD 儿童的就诊流程。

方法

本研究采用定性描述性回顾性设计和关键事件技术来捕捉情况。对 20 名医疗保健专业人员进行了采访,内容涉及影响高科技环境下就诊流程的情况,这些情况被定义为麻醉和放射科部门。

结果

研究结果揭示了影响高科技环境就诊流程的有利和不利情况。医疗保健专业人员描述的情况通常涉及他们与儿童和家长的互动。这些互动受到家长对手术的态度以及医疗保健专业人员和家长对手术的不同期望的影响。医疗保健专业人员还描述了其他经历,即不同情况下的不可预测性。这些情况与儿童在这些环境中不可预测的行为有关,也与为儿童提供的预用药的不可预测效果有关。此外,研究结果揭示了促进就诊流程的组织前提条件,例如在引导儿童进行手术时没有时间压力的感觉。

结论

在高科技环境中,医疗保健专业人员、ASD 儿童和家长之间的互动是复杂的。不可预测性是引导 ASD 儿童进行手术时的特征。这个地方对医疗保健专业人员、环境和组织都提出了要求。

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