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改变身体:严重儿童疾病期间家庭体验的范围综述和主题分析。

Changing bodies: A scoping review and thematic analysis of family experience during serious childhood illness.

机构信息

Dept of Child & Family Health & Methodologies Division, King's College London, London, UK.

School of Education & Sociology,University of Portsmouth Faculty of Humanities and Social Science, Portsmouth, UK.

出版信息

J Child Health Care. 2024 Dec;28(4):914-926. doi: 10.1177/13674935231168683. Epub 2023 Apr 7.

Abstract

This scoping review has investigated experiences of children and parents encountering in-patient treatment for serious childhood illness, including current or potential use of technology as a support mechanism. The research questions were 1. What do children experience during illness and treatment? 2. What do parents experience when their child is seriously ill in hospital? 3. What tech and non-tech interventions support children's experience of in-patient care? The research team identified = 22 relevant studies for review through JSTOR, Web of Science, SCOPUS and Science Direct. A thematic analysis of reviewed studies identified three key themes reflecting our research questions: and . Our findings reflect that information giving, kindness and play are central in hospital experiences. Parent and child needs in hospital are interwoven and under researched. Children reveal themselves as active producers of pseudo-safe spaces who continue to prioritise normal child and adolescent experiences during in-patient care.

摘要

本范围综述调查了儿童和家长在住院治疗严重儿童疾病时的体验,包括当前或潜在使用技术作为支持机制的情况。研究问题是:1. 儿童在患病和治疗期间有什么体验?2. 当孩子在医院病重时,父母有什么体验?3. 哪些技术和非技术干预措施支持儿童的住院护理体验?研究小组通过 JSTOR、Web of Science、SCOPUS 和 Science Direct 确定了 22 项相关研究进行综述。对综述研究的主题分析确定了反映我们研究问题的三个关键主题:儿童的体验、父母的体验和支持性干预措施。我们的研究结果反映出,信息提供、友善和游戏是医院体验的核心。父母和孩子在医院的需求相互交织,且研究不足。儿童表现出自己是伪安全空间的积极创造者,他们在住院期间仍然优先考虑正常的儿童和青少年体验。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/71e3/11607840/2dc622270bc4/10.1177_13674935231168683-fig1.jpg

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