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本文引用的文献

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Comprehensive physical domain care needs of burn patients: a qualitative study.烧伤患者的综合身体领域护理需求:一项定性研究。
Clin Cosmet Investig Dermatol. 2019 Aug 21;12:573-581. doi: 10.2147/CCID.S215517. eCollection 2019.
2
Management of Burns.烧伤的管理
N Engl J Med. 2019 Jun 13;380(24):2349-2359. doi: 10.1056/NEJMra1807442.
3
Support needs of parents of hospitalised children with a burn injury: An integrative review.烧伤住院儿童家长的支持需求:一项综合综述。
Burns. 2020 Jun;46(4):771-781. doi: 10.1016/j.burns.2019.04.021. Epub 2019 May 22.
4
Impact of Parental Acute Psychological Distress on Young Child Pain-Related Behavior Through Differences in Parenting Behavior During Pediatric Burn Wound Care.在小儿烧伤伤口护理期间,父母急性心理困扰通过养育行为差异对幼儿疼痛相关行为的影响。
J Clin Psychol Med Settings. 2019 Dec;26(4):516-529. doi: 10.1007/s10880-018-9596-1.
5
Parental Adjustment following Pediatric Burn Injury: The Role of Guilt, Shame, and Self-Compassion.儿科烧伤后父母的调整:内疚、羞耻和自我同情的作用。
J Pediatr Psychol. 2019 Mar 1;44(2):229-237. doi: 10.1093/jpepsy/jsy079.
6
Parents' experiences of Family Centred Care practices.父母对以家庭为中心的护理实践的体验。
J Pediatr Nurs. 2018 Sep-Oct;42:39-44. doi: 10.1016/j.pedn.2018.06.012. Epub 2018 Jul 6.
7
Feelings of guilt and embitterment in parents of children with burns and its associations with depression.烧伤儿童父母的内疚和痛苦情绪及其与抑郁症的关联。
Burns. 2018 Aug;44(5):1135-1140. doi: 10.1016/j.burns.2018.02.005. Epub 2018 Mar 7.
8
Parent-perceived isolation and barriers to psychosocial support: a qualitative study to investigate how peer support might help parents of burn-injured children.父母感知到的孤立及心理社会支持的障碍:一项关于探究同伴支持如何帮助烧伤儿童父母的定性研究
Scars Burn Heal. 2018 Mar 20;4:2059513118763801. doi: 10.1177/2059513118763801. eCollection 2018 Jan-Dec.
9
Mother, father and child traumatic stress reactions after paediatric burn: Within-family co-occurrence and parent-child discrepancies in appraisals of child stress.小儿烧伤后母亲、父亲和儿童的创伤应激反应:家庭内部的共现情况以及亲子在儿童应激评估方面的差异
Burns. 2018 Jun;44(4):861-869. doi: 10.1016/j.burns.2018.01.003. Epub 2018 Apr 12.
10
Experiences of guilt, shame and blame in those affected by burns: A qualitative systematic review.烧伤患者的内疚、羞耻和自责体验:一项定性系统评价
Burns. 2018 Aug;44(5):1026-1039. doi: 10.1016/j.burns.2017.11.012. Epub 2018 Feb 14.

父母在烧伤中心对支持性父母需求的体验。

Parents' lived experiences of parental needs for support at a burn centre.

机构信息

Department of Plastic, Hand and Reconstructive Surgery, National Burn Centre, Haukeland University Hospital , Bergen, Norway.

Department of Global Public Health and Primary Care, University of Bergen , Bergen, Norway.

出版信息

Int J Qual Stud Health Well-being. 2021 Dec;16(1):1855749. doi: 10.1080/17482631.2020.1855749.

DOI:10.1080/17482631.2020.1855749
PMID:33427115
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7808374/
Abstract

: A burn injury to a child is a traumatic event and the parent's emotional reactions and coping strategies affect the child's adaptive outcome. It is therefore important that parents get the right support. The aim was to explore parents' lived experiences of their need for support when having a child admitted to a burn centre. : Semi-structured face-to-face interviews were conducted with 22 parents of children age <12 years hospitalised with an accidental burn injury, 9 to 27 days after the burn accident, from April 2017 to July 2018. A Ricoeur-inspired textual analysis method was used. : Four themes emerged from the analysis and describe the parents' needs for support. The parents wanted to be taken care of as a whole family and feel safe in the hands of professionals. This, in turn, depended on being informed about the child's condition and treatment, but also on getting help in dealing with feelings of guilt. Not least, parents wanted opportunities to take care of their own fundamental needs in terms of hygiene, food, adequate rest and activities. : As an overall understanding the healthcare providers should focus on the family as a whole in care and treatment.

摘要

: 儿童烧伤是一种创伤性事件,父母的情绪反应和应对策略会影响孩子的适应结果。因此,父母获得正确的支持非常重要。本研究旨在探讨父母在孩子因意外烧伤住院期间对支持的需求的亲身经历。 : 2017 年 4 月至 2018 年 7 月,对 22 名年龄<12 岁的儿童的父母进行了半结构化的面对面访谈,这些儿童在烧伤事故发生后 9-27 天因意外烧伤住院。采用了 Ricoeur 启发的文本分析方法。 : 分析产生了四个主题,描述了父母的支持需求。父母希望作为一个整体家庭得到照顾,并在专业人员的手中感到安全。这反过来又取决于了解孩子的病情和治疗情况,但也取决于在处理内疚感方面得到帮助。父母还希望有机会照顾自己在卫生、食物、充足休息和活动方面的基本需求。 : 总体而言,医护人员应关注整个家庭的护理和治疗。