Akhbari Ziegler Schirin, de Souza Morais Rosane Luzia, Magalhães Lívia, Hadders-Algra Mijna
School of Health Sciences, Institute of Physiotherapy, Zurich University of Applied Sciences ZHAW, Winterthur, Switzerland.
Department of Physiotherapy, The Federal University of Vales do Jequitinhonha e Mucuri, Diamantina, Brazil.
Front Pediatr. 2023 Mar 30;11:983680. doi: 10.3389/fped.2023.983680. eCollection 2023.
Infants at high biological risk of or with a neurodevelopmental disorder run a high risk of delayed school readiness. This is especially true for infants in low- and middle-income countries (LMICs). This perspective paper first summarizes evidence on intervention elements that are effective in promoting family well-being and child development in infants at high biological risk in high income countries. Crucial elements are family centeredness, goal orientation, a home setting, focus on activity and participation, and challenging the infant to explore the world and the own body by means of self-produced movements. The studies revealed that coaching as applied in COPCA (COPing and CAring for infants with special needs) is a pivotal element determining the success of intervention.The paper continues by describing COPCA and its coaching. Next, we report on two pilot studies addressing COPCA's implementation in Brazil. Finally, we discuss why COPCA is a promising early intervention program for infants at high biological risk of neurodisability in LMICs: COPCA is adapted to the families' strengths and needs, it empowers families and promotes child development therewith facilitating school readiness. Moreover, it may be delivered by tele-coaching therewith eliminating families' burden to travel to distant intervention clinics.
具有高生物风险或患有神经发育障碍的婴儿入学准备延迟的风险很高。在低收入和中等收入国家(LMICs)的婴儿中尤其如此。本观点论文首先总结了关于在高收入国家对具有高生物风险的婴儿促进家庭幸福和儿童发展有效的干预要素的证据。关键要素是以家庭为中心、目标导向、家庭环境、关注活动和参与,以及通过自主运动挑战婴儿探索世界和自身身体。研究表明,COPCA(照顾有特殊需求的婴儿)中应用的指导是决定干预成功的关键要素。本文接着描述了COPCA及其指导。接下来,我们报告两项关于COPCA在巴西实施情况的试点研究。最后,我们讨论为什么COPCA对LMICs中具有高神经残疾生物风险的婴儿来说是一个有前景的早期干预项目:COPCA适应家庭的优势和需求,它赋予家庭权力并促进儿童发展,从而促进入学准备。此外,它可以通过远程指导来实施,从而消除家庭前往遥远干预诊所的负担。