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如何建立功能性神经障碍教育小组。

How to set up a functional neurological disorder education group.

机构信息

Neuropsychiatry, South London and Maudsley NHS Trust, London, UK

Neurology, King's College Hospital, London, UK.

出版信息

Pract Neurol. 2023 Aug;23(4):323-326. doi: 10.1136/pn-2023-003713. Epub 2023 Apr 26.

Abstract

Functional neurological disorder (FND) can be a difficult diagnosis for patients to understand and for clinicians to explain. The postdiagnostic support that patients with other chronic neurological illnesses normally receive is often not available to patients with FND. Here, we share our experience of how to set up an FND education group, including the content, practical aspects of delivering groups and how to avoid potential pitfalls. A group education session can improve understanding of the diagnosis among patients and caregivers, reduce stigma and provide self-management advice. Such groups should be multidisciplinary and include input from service users.

摘要

功能性神经障碍(FND)可能是一个让患者难以理解、临床医生难以解释的诊断。其他慢性神经疾病患者通常会获得的诊断后支持,往往无法提供给 FND 患者。在这里,我们分享了我们如何建立 FND 教育小组的经验,包括小组的内容、实施方面以及如何避免潜在问题。小组教育课程可以提高患者及其护理人员对诊断的理解,减少耻辱感,并提供自我管理建议。此类小组应该是多学科的,并包括服务使用者的意见。

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