Wang Yuanyuan, Cao Jinjin, Zhang Weiying, Chen Hongyu, Li Mei, Liu Zhifeng, Wang Jianan
Department of Nursing, Children's Hospital of Nanjing Medical University, Nanjing, China.
Department of Gastroenterology, Children's Hospital of Nanjing Medical University, Nanjing, China.
Front Pediatr. 2023 Apr 12;11:1066355. doi: 10.3389/fped.2023.1066355. eCollection 2023.
Childhood functional constipation is a worldwide problem that affects the intestinal function of children and the quality of life of their families. Treatment and management of the disease need to be carried out at home by parents. Assessment of caregiving needs is an important link in planning and implementing the intervention. This study aimed to assess the caregiving needs of parents of FC infants and toddlers.
The researchers recruited convenience samples of parents from an outpatient pediatric constipation clinic of a children's medical center. Totally 211 fathers/mothers were recruited. Nursing needs were measured by a questionnaire, and associations between nursing needs and potential factors were examined using multiple regression analysis.
The vast majority of participants (88.7%) expressed the need of receiving support from professionals, and only 44 (20.85%) had obtained help from medical staff. The needs of parents mainly include information needs, health needs, psychological needs, and social needs. Of all the needs, the highest score was for information needs (3.87 ± 0.69), followed by the dimension of health needs (3.74 ± 0.82). Results showed statistically significant differences in parental education, place of residence, age of children, duration of FC, defecation frequency, difficulty of defecation, and stool traits in nursing needs (< 0.05). The regression model explained 64.2% of the variance of nursing needs.
Information needs were the major concern for parents, and the unmet needs of parents should be addressed during treatment and care. When developing care plans and providing health education, it should be adjusted according to the specific conditions of the child and parents to improve the compliance of the parents with treatment and care.
儿童功能性便秘是一个全球性问题，影响儿童的肠道功能及其家庭的生活质量。该疾病的治疗和管理需要家长在家中进行。评估照护需求是规划和实施干预措施的重要环节。本研究旨在评估功能性便秘婴幼儿家长的照护需求。
研究人员从一家儿童医疗中心的儿科便秘门诊招募了方便样本的家长。共招募了211名父亲/母亲。通过问卷调查来衡量护理需求，并使用多元回归分析来检验护理需求与潜在因素之间的关联。
绝大多数参与者（88.7%）表示需要得到专业人员的支持，只有44人（20.85%）获得过医护人员的帮助。家长的需求主要包括信息需求、健康需求、心理需求和社会需求。在所有需求中，信息需求得分最高（3.87±0.69），其次是健康需求维度（3.74±0.82）。结果显示，在护理需求方面，家长的教育程度、居住地点、孩子年龄、功能性便秘持续时间、排便频率、排便困难程度和粪便性状存在统计学显著差异（<0.05）。回归模型解释了护理需求方差的64.2%。
信息需求是家长主要关心的问题，在治疗和照护过程中应解决家长未满足的需求。制定照护计划和提供健康教育时，应根据孩子和家长的具体情况进行调整，以提高家长对治疗和照护的依从性。
