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我可以展现多少真实的自我?自闭症女性的社会适应:一项定性研究。

How much of my true self can i show? social adaptation in autistic women: a qualitative study.

机构信息

Department of Psychology, Ochanomizu University, 2-1-1 Otsuka, Bunkyo-ku, Tokyo, 112- 8610, Japan.

出版信息

BMC Psychol. 2023 May 3;11(1):144. doi: 10.1186/s40359-023-01192-5.

Abstract

BACKGROUND

Social adaptation is often aimed at supporting autistic people, yet its specific goals may not include their actual perspectives. That is, the state of adaptation is judged based on the standards and values of non-autistic people. This qualitative study focused on autistic women's perceptions of social adaptation and examined their lived experiences in daily life, as adaptive behaviors have often been reported as a "female autism phenotype."

METHODS

Semi-structured interviews were conducted face-to-face with ten autistic women aged 28-50 years (M = 36.7; standard SD = 7.66). The analysis was conducted based on the grounded theory approach.

RESULTS

Two core perceptions were identified: maintaining stable relationships and fulfilling social roles based on past experiences of "maladaptation." The participants sought adaptations within a reasonable range and adjusted their balance with society to maintain stability in their daily lives.

CONCLUSION

The findings indicated that autistic women's perceptions of adaptation were based on the accumulation of past negative experiences. Further harmful efforts should be prevented. Support for autistic people to make their own choices in life is also important. Moreover, autistic women need a place where they can be themselves and be accepted as they are. This study showed the importance of changing the environment rather than modifying autistic people to adapt to a society.

摘要

背景

社会适应通常旨在为自闭症患者提供支持,但它的具体目标可能并不包括他们的实际观点。也就是说,适应状态是根据非自闭症人士的标准和价值观来判断的。本定性研究关注自闭症女性对社会适应的看法,并考察了她们在日常生活中的实际体验,因为适应性行为常常被报道为“女性自闭症表型”。

方法

对 10 名年龄在 28-50 岁(M=36.7;SD=7.66)的自闭症女性进行了面对面的半结构式访谈。分析基于扎根理论方法进行。

结果

确定了两个核心观点:基于过去“适应不良”的经验,保持稳定的关系和履行社会角色。参与者在合理范围内寻求适应,并调整与社会的平衡,以维持日常生活的稳定。

结论

研究结果表明,自闭症女性对适应的看法是基于过去负面经验的积累。应该防止进一步的有害努力。支持自闭症人士在生活中做出自己的选择也很重要。此外,自闭症女性需要一个可以做自己、被接受的地方。本研究表明,改变环境比改变自闭症人士以适应社会更为重要。

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