Department of Orthopaedics, Peking University Third Hospital, Beijing, China; Engineering Research Center of Bone and Joint Precision Medicine, Beijing, China; Beijing Key Laboratory of Spinal Disease Research, Beijing, China.
Department of Radiology, Peking University Third Hospital, Beijing, China.
J Clin Neurosci. 2023 Jul;113:7-12. doi: 10.1016/j.jocn.2023.04.014. Epub 2023 May 3.
We aimed to translate and validate the Quality of Life Profile for Spine Deformities (QLPSD), an age-specific tool assessing the individuals' health-related quality of life (HRQoL), into a Chinese version for adolescent individuals with adolescent idiopathic scoliosis (AIS). The Chinese version was translated from the original Spanish QLPSD following widely accepted guidelines and evaluated by both individuals with AIS and experts. 172 Chinese-speaking individuals between 9 and 18 years of age with Cobb angles between 20° and 40° were included. Internal consistency, test-retest reliability, and floor and ceiling effects were all analyzed. Convergent validity was evaluated by correlating the measures in the Chinese QLPSD with those in the 22-item Scoliosis Research Society Questionnaire (SRS-22). Known-groups construct validity was assessed by comparing the QLPSD scores of two groups of individuals divided by their Cobb angles. The internal consistency (total Cronbach's alpha = 0.917) and the test-retest reliability (total intra-class correlation coefficient = 0.896) were both satisfactory. The Chinese QLPSD correlated well with the SRS-22 in the total score and in relevant subscales (r = -0.572, p < 0.01). The questionnaire was able to differentiate between individuals with different Cobb angles. No floor or ceiling effects were shown in the total score, neither were there ceiling effects in the subscales, but floor effects were observed in four of the five subscales, between 20.0% and 45.7%. The Chinese version of the QLPSD shows adequate transcultural adaptation, reliability, and validity, and is useful as a clinical evaluation tool for the HRQoL of adolescent Chinese-speaking individuals with AIS.
我们旨在将专门评估脊柱畸形患者健康相关生活质量（HRQoL）的特定年龄工具——脊柱畸形生活质量问卷（QLPSD）翻译成中文简体版，以用于评估青少年特发性脊柱侧凸（AIS）患者的健康相关生活质量。中文简体版是按照广泛认可的准则，由 AIS 患者和专家对原始西班牙语版 QLPSD 进行翻译和验证的。本研究纳入了 172 名 Cobb 角在 20°至 40°之间的 9 至 18 岁的讲中文的个体。分析了内部一致性、重测信度以及下限和上限效应。通过将 QLPSD 量表的测量结果与 22 项脊柱侧凸研究协会问卷（SRS-22）的测量结果进行相关分析，评估了其聚合效度。通过比较根据 Cobb 角分组的两组患者的 QLPSD 评分，评估了其已知组构效度。内部一致性（总 Cronbach's alpha = 0.917）和重测信度（总组内相关系数 = 0.896）均令人满意。QLPSD 总分及相关子量表与 SRS-22 总分及相关子量表均呈显著负相关（r = -0.572，p < 0.01）。问卷能够区分 Cobb 角不同的患者。总分和子量表均无下限或上限效应，但在五个子量表中的四个子量表中观察到下限效应，范围在 20.0%至 45.7%之间。中文简体版 QLPSD 具有良好的跨文化适应性、可靠性和有效性，可作为评估 AIS 青少年患者 HRQoL 的临床评估工具。
