Great Ormond Street Hospital for Children, London, UK.
Division of Pulmonary, Critical Care, and Sleep Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Curr Opin Pulm Med. 2023 Jul 1;29(4):277-284. doi: 10.1097/MCP.0000000000000968. Epub 2023 May 9.
Guidelines for cystic fibrosis (CF) care recommend multidisciplinary teams see patients at least quarterly with frequent measurement of spirometry and collection of respiratory cultures. This can be burdensome for people with CF, particularly if they live far from a specialized care center. This has led to an interest in telehealth coupled with remote monitoring. We review the recent literature on these topics for people with CF.
The COVID-19 pandemic accelerated a move toward remote delivery of CF care and multiple recent publications have reported on the feasibility of telehealth, remote spirometry, remote collection of respiratory cultures, adherence monitoring, cough assessment, symptom monitoring and activity tracking. Useful data can be obtained and both clinicians and patients have favorable opinions about remote delivery of healthcare, though the impact on clinical outcomes is not yet known.
Telehealth and remote monitoring for people with CF is feasible and has grown in use, though it is too early to know how prominently these approaches will fit into routine care for CF.
囊性纤维化(CF)护理指南建议多学科团队每季度至少对患者进行一次随访,频繁测量肺功能和收集呼吸道培养物。这对于 CF 患者来说可能负担过重,尤其是如果他们居住在远离专门治疗中心的地方。这导致了对远程医疗和远程监测的兴趣。我们回顾了最近有关 CF 患者的这些主题的文献。
COVID-19 大流行加速了 CF 护理的远程交付,最近有多篇出版物报告了远程医疗、远程肺功能、远程呼吸道培养物采集、依从性监测、咳嗽评估、症状监测和活动跟踪的可行性。可以获得有用的数据,临床医生和患者对远程医疗都有良好的评价,尽管其对临床结果的影响尚不清楚。
对于 CF 患者来说,远程医疗和远程监测是可行的,并且已经得到了越来越多的应用,尽管现在还不知道这些方法在 CF 常规护理中的重要程度。