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评估可供腹主动脉瘤患者使用的在线网站和 YouTube 资源。

Assessment of Available Online Website and YouTube Resources for Patients with Abdominal Aortic Aneurysms.

机构信息

The Leeds Vascular Institute, Leeds General Infirmary, Leeds Teaching Hospitals NHS Trust, Leeds, UK.

The Leeds Vascular Institute, Leeds General Infirmary, Leeds Teaching Hospitals NHS Trust, Leeds, UK; The Leeds Institute of Cardiovascular & Metabolic Medicine, School of Medicine, University of Leeds, Leeds, UK.

出版信息

Ann Vasc Surg. 2023 Oct;96:176-185. doi: 10.1016/j.avsg.2023.04.031. Epub 2023 May 9.

Abstract

BACKGROUND

Over the last decade, patients have displayed a greater tendency to search for online information related to their health before seeking advice from a clinician. This study aims to determine the current quality and educational content of online patient information for abdominal aortic aneurysms (AAAs).

METHODS

In March 2022, the 3 most popular search engines by market shares (Google, Yahoo!, and Bing) and the video platform YouTube were interrogated for the term "abdominal aortic aneurysm". Validated scoring tools were used to assess quality and readability of the top 50 results for each search engine and to evaluate reliability and educational quality of the first 20 YouTube videos returned by the search. A custom-made scoring system was used to assess content.

RESULTS

Forty-five unique websites were analysed, 29% of which held Health on the Net certification. Median Flesch-Kincaid Reading Ease (interquartile range [IQR]) was 56.4 (50.4-62.75), with the average website falling under the "difficult to read" category. Median Michigan score (IQR) was 38.5 (32-43.5), reflecting "weak" quality. Websites with a higher content-specific score had a significantly higher median Michigan score. Sixty percent of websites discussed benefits and risks related to AAA treatment, and only 31% discussed advantages and disadvantages of open versus endovascular treatment. No websites mentioned the volume-outcome relationship in aneurysm surgery. Eight unique YouTube videos were assessed. Median Journal of the American Medical Association score (IQR) was 2 (2-2.25). Median Global Quality Score score (IQR) was 3 (2-4). Median content score was 1 (0-2).

CONCLUSIONS

The current average online information on AAA is of 'weak' quality and 'difficult' (i.e., above the standard reading ability of a 13- to 15-year-old) readability. Healthcare providers should focus on the provision of better AAA-focused patient information (e.g., appropriately referenced, regularly reviewed, and limiting advertisements where possible). The involvement of patient advisory groups during resource development is highly recommended.

摘要

背景

在过去十年中,患者在向临床医生咨询之前,更倾向于搜索与自身健康相关的在线信息。本研究旨在确定当前关于腹主动脉瘤 (AAA) 的在线患者信息的质量和教育内容。

方法

2022 年 3 月,通过市场份额排名前 3 的搜索引擎(谷歌、雅虎!和必应)和视频平台 YouTube 搜索“腹主动脉瘤”一词。使用验证评分工具评估每个搜索引擎的前 50 个结果的质量和可读性,并评估前 20 个返回的 YouTube 视频的可靠性和教育质量。使用自定义评分系统评估内容。

结果

分析了 45 个独特的网站,其中 29%的网站获得了健康在线认证。中位数 Flesch-Kincaid 阅读舒适度(四分位距[IQR])为 56.4(50.4-62.75),平均网站属于“难读”类别。中位数密歇根评分(IQR)为 38.5(32-43.5),反映出“质量差”。内容特定评分较高的网站密歇根评分中位数明显较高。60%的网站讨论了 AAA 治疗的益处和风险,只有 31%的网站讨论了开放与血管内治疗的优缺点。没有网站提到动脉瘤手术中的量效关系。评估了 8 个独特的 YouTube 视频。中位数美国医学会杂志评分(IQR)为 2(2-2.25)。中位数全球质量评分(IQR)为 3(2-4)。中位数内容评分为 1(0-2)。

结论

目前关于 AAA 的在线信息平均质量较差,可读性“困难”(即超过 13-15 岁标准阅读能力)。医疗保健提供者应专注于提供更好的 AAA 重点患者信息(例如,适当引用、定期审查,并尽可能限制广告)。强烈建议在资源开发过程中让患者咨询小组参与。

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