Faculty of Medicine and Health, University of Sydney, Camperdown, New South Wales, Australia.
Prince of Wales Hospital, New South Wales, Randwick, Australia.
J Clin Nurs. 2023 Sep;32(17-18):6648-6661. doi: 10.1111/jocn.16725. Epub 2023 Apr 26.
To explore the family's experience being offered memory making during end-of-life care in the adult intensive care unit and its use in early bereavement.
Family members of individuals who develop a critical illness requiring emergency hospitalisation are unlikely to be prepared for a possible death. This places them at increased risk of poorer bereavement experiences. One potential intervention is memory making, which is an act that provides tangible objects such as a handprint, footprint, lock of hair, or teddy bear, that allows connections with and provides meaningful memories about a person. Families in the adult acute population reportedly have positive reactions regarding the objects, but it is unknown the object's effects on early bereavement experiences.
Descriptive qualitative study utilising inductive reflexive thematic analysis. Reporting adheres to the COREQ checklist.
Between May 2019-December 2020, a purposeful, convenience sample of 21 participants from a tertiary referral, adult intensive care unit in Australia were recruited to explore their experiences being offered memory making during end-of-life care and the objects use in early bereavement. Interviews were conducted using a semi-structured format and occurred at the participants' location of choice.
Data analysis generated three themes: guidance during end of life by healthcare professionals that recognises the autonomy of the family; object used as a trigger to access memories; and storage and preservation of the object as an indication of its sentimental value and use in early bereavement CONCLUSION: Memory making objects such as handprints, locks of hair, or teddy bears received in the adult intensive care unit were valued and utilised during early bereavement by most recipients.
Findings inform practice evidence gaps regarding the family's experiences of memory making received as a bereavement intervention in the adult acute population.
Participants contributed through sharing their first-hand experiences of receiving memory making in the adult intensive care unit.
探索在成人重症监护病房临终关怀中提供记忆制作服务的家庭体验及其在早期丧亲中的应用。
患有需要紧急住院治疗的重病的个体的家庭成员不太可能为可能的死亡做好准备。这使他们面临更差的丧亲体验风险。一种潜在的干预措施是记忆制作,它是一种提供有形物品的行为,例如手印、脚印、一缕头发或泰迪熊,这可以与一个人建立联系,并提供有关他的有意义的记忆。据报道,成人急性人群的家属对这些物品有积极的反应,但尚不清楚这些物品对早期丧亲体验的影响。
使用归纳反思主题分析的描述性定性研究。报告符合 COREQ 清单。
在 2019 年 5 月至 2020 年 12 月期间,从澳大利亚一家三级转诊成人重症监护病房中,通过有目的的便利抽样,招募了 21 名参与者,以探讨他们在临终关怀期间接受记忆制作服务的体验以及在早期丧亲中使用这些物品的体验。访谈采用半结构化格式进行,并在参与者选择的地点进行。
数据分析生成了三个主题:医护人员在生命末期为尊重家庭自主权提供指导;物品作为触发记忆的工具;以及储存和保存物品,以表明其情感价值并在早期丧亲中使用。
在成人重症监护病房中收到的手印、头发绺或泰迪熊等记忆制作物品在大多数接受者的早期丧亲中受到重视并得到利用。
研究结果为成人急性人群中作为丧亲干预措施的家庭对记忆制作的体验提供了实践证据空白。
参与者通过分享他们在成人重症监护病房中接受记忆制作的第一手经验为研究做出了贡献。