School of Nursing, University of Maryland, Baltimore, MD, USA.
College of Nursing, University of Tennessee, Knoxville, TN, USA.
Am J Hosp Palliat Care. 2024 Mar;41(3):245-252. doi: 10.1177/10499091231177053. Epub 2023 May 18.
: Thanks to advances in healthcare and technology, adolescents with medical complexity (AMC) and life-threatening conditions are living longer lives and may be expected to transition to adult health care. Yet, current systems and policies of transition care may not reflect their needs, those of their family, or the impact of social determinants of health. The goal of this study was to describe the relationship between social determinants of health and high-quality transition care. : Retrospective cohort study of the 2019-2020 National Survey of Children's Health. The main outcome variable was any support for transition to adult health care. Independent variables were based on a social determinants of health framework. Weighted logistic regression was used to evaluate the association between social determinants and any support for transition to adult health care. : Final weighted sample included 444,915 AMC. AMC were distributed across income levels, most commonly lived in the South, and in supportive, resilient communities. More than 50% experienced adverse childhood events and less than 50% had adequate insurance. Less than one third received any transition support from providers; those who did reported time alone with the provider or active management. Social determinants related to missed days of school, community support/family context, and poverty were associated with both receipt and absence of transition care. : AMC and their families navigate complex environments and associated stressors. Social determinants of health, particularly economic, community/social, and healthcare exert significant and nuanced influence. Such impacts should be incorporated into transition care.
: 由于医疗保健和技术的进步,患有复杂医学病症(AMC)和危及生命的疾病的青少年的寿命更长,他们可能需要过渡到成人保健。然而,目前的过渡护理系统和政策可能无法反映他们的需求、他们的家庭的需求,或健康的社会决定因素的影响。本研究的目的是描述健康的社会决定因素与高质量过渡护理之间的关系。 : 对 2019-2020 年全国儿童健康调查的回顾性队列研究。主要结局变量是任何支持向成人保健过渡的措施。自变量基于健康的社会决定因素框架。使用加权逻辑回归评估社会决定因素与任何支持向成人保健过渡的措施之间的关联。 : 最终加权样本包括 444915 名 AMC。AMC 分布在不同的收入水平,最常见于南部,在支持性、有弹性的社区。超过 50%的人经历过不良的童年事件,不到 50%的人有足够的保险。不到三分之一的人从提供者那里获得任何过渡支持;那些获得支持的人报告与提供者单独相处或积极管理。与缺课、社区支持/家庭背景和贫困有关的社会决定因素与获得和缺乏过渡护理都有关。 : AMC 和他们的家庭在复杂的环境中艰难前行,并面临着相关的压力。健康的社会决定因素,特别是经济、社区/社会和医疗保健,产生了重大而微妙的影响。这些影响应该纳入过渡护理。