Lester Ethan G, Fishbein Nathan S, Peterson Annabel, Vranceanu Ana-Maria
The Center for Health Outcomes and Interdisciplinary Research (CHOIR), Massachusetts General Hospital, Boston, MA, United States of America.
Harvard Medical School, Boston, MA, United States of America.
PEC Innov. 2022 Aug 20;1:100076. doi: 10.1016/j.pecinn.2022.100076. eCollection 2022 Dec.
We aimed to test early feasibility, acceptability, and signals of improvement after the 8-week individually delivered asynchronous, web-based mind-body program (NF-Web) modeled after the synchronous group-based live video program (Relaxation Response Resiliency Program for NF; 3RP-NF).
Two cohorts (cohort 1 = 14, cohort 2 = 14) completed baseline and posttest (feasibility markers, tests).
Enrolled participants ( = 28; 80% of those eligible) completed baseline (N = 28; 100% of sample) and posttests ( = 25; 89.3%). Video lesson (58.0%) and homework (70.9%) completion were fair to good. Satisfaction ( = 8.85/10; SD = 2.35), credibility ( = 7.07/10; SD = 1.44), and expectancy ( = 6.68/10; = 2.10) were good to excellent. Participation was associated with statistically significant pre-to-post positive changes in quality of life (QoL; Physical, Psychological, Social, and Environmental,; < 0.05) and emotional distress (depression, anxiety, and stress; < 0.05). Pain intensity and interference did not improve significantly ( > 0.05) after participation.
NF-Web demonstrates initial feasibility, acceptability, and signals of improvement. Results support future trials to ascertain efficacy.
Web-based programs may be valuable for individuals with rare illness who prefer to learn skills on their own timeline, have barriers to live video participation, and who also have apprehensions about interacting with others during treatment.
我们旨在测试一种为期8周的基于网络的个体化异步身心计划（NF-Web）的早期可行性、可接受性以及改善迹象。该计划是仿照基于同步小组直播视频的计划（针对NF的放松反应恢复力计划；3RP-NF）制定的。
两个队列（队列1 = 14人，队列2 = 14人）完成了基线和后测（可行性指标、测试）。
登记的参与者（n = 28；占符合条件者的80%）完成了基线评估（N = 28；占样本的100%）和后测（n = 25；占89.3%）。视频课程完成率（58.0%）和家庭作业完成率（70.9%）为中等至良好。满意度（= 8.85/10；标准差 = 2.35）、可信度（= 7.07/10；标准差 = 1.44）和期望值（= 6.68/10；标准差 = 2.10）为良好至优秀。参与与生活质量（QoL；身体、心理、社会和环境方面；P < 0.05）和情绪困扰（抑郁、焦虑和压力；P < 0.05）从基线到后测的统计学显著正向变化相关。参与后疼痛强度和干扰没有显著改善（P > 0.05）。
NF-Web显示出初步的可行性、可接受性和改善迹象。结果支持未来进行试验以确定疗效。
基于网络的计划对于患有罕见疾病的个体可能具有价值，这些个体更喜欢按照自己的时间安排学习技能，参与直播视频存在障碍，并且在治疗期间对与他人互动也有所顾虑。
