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东门中心:重新平衡车轮——一种双重视角看待胎儿酒精谱系障碍及其他与跨代逆境相关疾病的方法

The Eastern Door Center: re-balancing the wheel-a Two-Eyed Seeing approach to FASD and other disorders related to transgenerational adversity.

作者信息

Cox Lori Vitale

机构信息

University of British Columbia, Vancouver, BC, Canada.

出版信息

Front Sociol. 2023 May 5;8:910153. doi: 10.3389/fsoc.2023.910153. eCollection 2023.

Abstract

In 2015, the Canadian Truth and Reconciliation Commission (TRC) called for immediate action to address the lack of access to health services for Fetal Alcohol Spectrum Disorder (FASD) in Indigenous communities. They called for the provision of culturally safe, community-based, FASD diagnostic, intervention and prevention services. FASD is a neurodevelopmental condition that can affect all aspects of functioning. The term refers to a spectrum of conditions occurring as a result of prenatal alcohol exposure (PAE) and associated risk factors. PAE can affect both physical and mental health leading to problems with learning, memory, attention, language, social behavior, executive functioning, sleep, and affect regulation. According to Elders in Mi'kmaq First Nations (FN) communities, FASD is a condition that is rooted in transgenerational trauma and the loss of relationship to their land, their language and the traditional community culture. The Elsipogtog Eastern Door (ED) Center opened in 2006 to provide culturally informed diagnosis, intervention and prevention for FASD and related conditions. The ED was the first FASD diagnostic team in Atlantic Canada and it served as a demonstration model for the New Brunswick FASD Center of Excellence as well as for Indigenous communities regionally and nationally. In this article, we outline the history and evolution of the Eastern Door Center and its programs and describe some of the successes of this model as well as some of its limitations in practice.

摘要

2015年,加拿大真相与和解委员会呼吁立即采取行动,解决原住民社区胎儿酒精谱系障碍(FASD)患者难以获得医疗服务的问题。他们呼吁提供具有文化安全性、基于社区的FASD诊断、干预和预防服务。FASD是一种神经发育疾病,会影响身体机能的各个方面。该术语指的是因产前酒精暴露(PAE)及相关风险因素而出现的一系列病症。PAE会影响身心健康,导致学习、记忆、注意力、语言、社交行为、执行功能、睡眠及情绪调节等方面出现问题。据米克马克第一民族(FN)社区的长者称,FASD这种病症源于跨代创伤以及与他们的土地、语言和传统社区文化失去联系。埃尔西波戈托格东门(ED)中心于2006年开业,为FASD及相关病症提供基于文化的诊断、干预和预防服务。ED是加拿大大西洋地区首个FASD诊断团队,它为新不伦瑞克卓越FASD中心以及地区和全国的原住民社区树立了示范榜样。在本文中,我们概述了东门中心及其项目的历史和发展,并描述了该模式取得的一些成功之处以及在实践中的一些局限性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e7ee/10196138/2290deec2f89/fsoc-08-910153-g0001.jpg

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