Centre for Medical Ethics, University of Oslo, Oslo, Norway.
Centre for Interdisciplinary Health Sciences, University of Oslo, Oslo, Norway.
J Ment Health. 2024 Apr;33(2):177-184. doi: 10.1080/09638237.2023.2210650. Epub 2023 May 22.
The empirical literature on the lived experience of electroconvulsive therapy (ECT) is limited, divergent, and largely focused on the experiences of procedures, (adverse) effects, information provision, or decision-making.
This study aimed to investigate aspects related to the lived experience and meaning-making of people who have had ECT.
In-depth interviews with 21 women (21-65 years old) were analyzed using interpretative phenomenological analysis (IPA).
A subgroup of nine participants described more negative experiences with ECT. A common factor for these participants was the experience of trauma that remained under-treated. The superordinate themes identified were a lack of trauma-based and recovery-oriented treatment. The rest of the sample (12) expressed more positive experiences with ECT.
This study suggests that exploring more broadly the impacts of ECT at the long term offers insights that can help design more person-centered services aligned to the needs of the treatment recipients. Educational modules for mental health care staff should include, besides knowledge on the methods' effectiveness, additional evidence about treatment recipients' subjective concerns and the relevance of trauma and recovery-oriented care models.
关于电痉挛疗法(ECT)的真实体验的实证文献有限、存在差异,且主要集中在程序体验、(不良)效果、信息提供或决策方面。
本研究旨在调查与接受过 ECT 的人群的生活体验和意义建构相关的方面。
对 21 名女性(21-65 岁)进行深入访谈,采用解释性现象学分析(IPA)进行分析。
有一个亚组的 9 名参与者描述了更多与 ECT 相关的负面体验。这些参与者的一个共同因素是创伤体验仍未得到充分治疗。确定的主要主题是缺乏基于创伤和以康复为导向的治疗。其余 12 名参与者则表达了更多对 ECT 的积极体验。
本研究表明,更广泛地探讨 ECT 的长期影响可以提供有助于设计更符合治疗对象需求的以患者为中心的服务的见解。精神卫生保健人员的教育模块除了包含关于方法有效性的知识外,还应包含有关治疗对象的主观关注点以及创伤和以康复为导向的护理模式相关性的额外证据。