接受者对电抽搐治疗（ECT）信息提供的体验。
Recipients' experience with information provision for electroconvulsive therapy (ECT).
机构信息
Centre for medical ethics, Institute for health and society, University of Oslo, P.O. Box 1130, Blindern, 03168, Oslo, Norway.
出版信息
BMC Psychiatry. 2022 Feb 4;22(1):86. doi: 10.1186/s12888-022-03720-w.
BACKGROUND
Despite improvements, studies continue to report unsatisfactory provision of information before, during and after electroconvulsive treatment (ECT).
AIMS
The study explores participants' experiences with information provision about ECT.
METHODS
In-depth interviews with 21 participants (21- 65 year-old) were conducted. Thematic analysis resulted in identification of four themes: pre-treatment knowledge, experience of informed consent, the need for information depth and life after ECT. The study includes user involvement.
RESULTS
Although some participants were satisfied with information provision, the majority experienced an education deficit throughout the treatment period. Their consent was based mostly on oral information, insufficient and unvaried information on official health websites and media. Further, patients reported a lack of follow-up services that can attend to (neuro) psychological concerns.
CONCLUSIONS
Better access to updated factual and narrative information should support patient education and autonomy. Active use of diary writing, better follow-up and more varied representations of experience with ECT in media and health information sites are necessary to educate, improve consent processes and reduce stigma.
背景
尽管有所改善，但研究仍继续报告电抽搐治疗（ECT）前后的信息提供情况并不理想。
目的
本研究探讨了参与者对 ECT 相关信息提供的体验。
方法
对 21 名参与者（21-65 岁）进行了深入访谈。主题分析产生了四个主题：治疗前的知识、知情同意的体验、信息深度的需求和 ECT 后的生活。本研究包括用户参与。
结果
尽管有些参与者对信息提供感到满意，但大多数人在整个治疗期间都经历了教育不足。他们的同意主要基于口头信息，官方健康网站和媒体上提供的信息不足且单调。此外，患者报告缺乏可以解决（神经）心理问题的后续服务。
结论
更好地获取更新的事实和叙述性信息应支持患者教育和自主权。积极使用日记写作、更好的后续服务以及在媒体和健康信息网站上更具多样性地呈现 ECT 体验，这对于教育、改善同意过程和减少污名化是必要的。
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