Bogart Kathleen R, Bryson Brooke A, Harcourt Diana
School of Psychological Science, Oregon State University, Corvallis, OR 97331, USA.
Department of Psychology, Texas State University, San Marcos, TX 78666, USA.
Body Image. 2023 Sep;46:91-102. doi: 10.1016/j.bodyim.2023.04.009. Epub 2023 May 27.
Although the disclosure of invisible stigmatized identities has been frequently researched, little work has examined disclosure of facial differences (FD), in which stigma is often highly visible. People with FD are frequently expected by others to disclose or explain their condition. Qualitative work indicates that people with FD have a range of disclosure approaches from agentic disclosure (feeling obliged to disclose), autonomous nondisclosure (choosing not to disclose or to disclose only to certain people), and autonomous disclosure (choosing to openly disclose). The purpose of the present study was to validate these disclosure approaches in a large international sample, examine their frequency of use, and test their relationship to psychosocial outcomes using validated measures. English-speaking participants (n = 288) with 33 different types of FD completed an online survey of disclosure approaches and psychosocial outcomes (i.e. anxiety, depression, self-esteem, stigma, job satisfaction, and relationship self-concept). Participants disclosed to 59 % of the people they knew. Selective and indiscriminate disclosure were the most frequently used and recommended approaches. As predicted, autonomous disclosure was associated with more positive psychosocial outcomes than agentic (non)disclosure and autonomous nondisclosure. Findings from this study can support disclosure autonomy, and thus positive psychosocial outcomes, among people with FD.
尽管对不可见的污名化身份的披露已有大量研究,但对面部差异(FD)的披露却鲜有涉及,而面部差异的污名往往非常明显。其他人常常期望有面部差异的人披露或解释他们的情况。定性研究表明,有面部差异的人有一系列的披露方式,从主动披露(觉得有义务披露)、自主不披露(选择不披露或只向特定的人披露)到自主披露(选择公开披露)。本研究的目的是在一个大型国际样本中验证这些披露方式,考察它们的使用频率,并使用经过验证的测量方法测试它们与心理社会结果的关系。患有33种不同类型面部差异的英语使用者(n = 288)完成了一项关于披露方式和心理社会结果(即焦虑、抑郁、自尊、污名、工作满意度和关系自我概念)的在线调查。参与者向他们认识的59%的人披露了情况。选择性披露和不加区分的披露是最常用和被推荐的方式。正如预期的那样,与主动(不)披露和自主不披露相比,自主披露与更积极的心理社会结果相关。本研究的结果可以支持有面部差异的人实现披露自主性,从而获得积极的心理社会结果。