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理解自闭症身份认同、自我表露与伪装之间的关系。

Understanding the Relationships Between Autistic Identity, Disclosure, and Camouflaging.

作者信息

Cage Eilidh, Troxell-Whitman Zoe

机构信息

Department of Psychology, Royal Holloway, University of London, Egham, United Kingdom.

Division of Psychology, Faculty of Natural Sciences, University of Stirling, Stirling, Scotland.

出版信息

Autism Adulthood. 2020 Dec 1;2(4):334-338. doi: 10.1089/aut.2020.0016. Epub 2020 Dec 11.

Abstract

BACKGROUND

Camouflaging involves concealing an autistic identity, for example, by adopting nonautistic behaviors in social contexts. We currently know little about the relationship between autistic identity and camouflaging. Furthermore, other variables may mediate the relationship between camouflaging and identity, and this study examined whether disclosure (being openly autistic) might mediate the relationship. We predicted that fewer camouflaging behaviors would be associated with higher autistic identity when an individual is more open about being autistic.

METHODS

One hundred eighty autistic adults (52% female, 42% male, 5% other gender identities, and 1% preferred not to say) took part in the study. They completed an online survey with measures of camouflaging, autistic identity, and disclosure of autistic status.

RESULTS

We found a significant mediation effect such that autistic identity had an indirect negative effect on camouflaging mediated via disclosure. In other words, higher autistic identity linked to more disclosure, which in turn linked to fewer camouflaging behaviors. However, there was evidence for competitive mediation, such that the direct effect (the relationship between identity and camouflaging ignoring disclosure) was significant, with higher autistic identity linking directly to camouflaging.

CONCLUSIONS

The initial hypothesis was confirmed, with higher autistic identity linked to less camouflaging via disclosure. This finding indicates that camouflaging can reduce when there is high autistic identification, someone has openly disclosed that they are autistic to others. However, the direct effect between identity and camouflaging suggests that there may be conflicts for someone who identifies strongly with being autistic but continues to camouflage. Other variables may play a role in the relationship between identity and camouflaging, such as fear of discrimination, self-awareness, timing of diagnosis, age, ethnicity, or gender. The findings indicate the importance of safe nondiscriminatory environments where individuals can disclose and express their autistic identity, which may in turn reduce camouflaging.

LAY SUMMARY

Camouflaging involves hiding or masking being autistic or using strategies to appear as though nonautistic. Past research has found that camouflaging relates to poorer mental health. Given this, we must understand ways to reduce camouflaging. In this study, we looked at the links between camouflaging, autistic identity (a sense of affiliation with the autistic community), and disclosure (being openly autistic). We know from other research that identifying strongly with the autistic community may protect against mental health difficulties, so we wanted to explore the role autistic identity might play in camouflaging. The purpose was to understand the relationships between camouflaging, autistic identity, and disclosure. We considered disclosure because someone could have a strong sense of autistic identity but might not be open about this to others. We tested the idea that someone with a strong autistic identity might be more openly autistic, and this then has a knock-on effect that links to less camouflaging. One hundred and eighty autistic adults completed an online survey. They answered questions about camouflaging, autistic identity, and disclosure. They also answered questions about who they were (e.g., age, gender) and autistic characteristics. We analyzed everyone's answers using an analysis called "mediation analysis." This analysis enables us to test how disclosure influences any association between camouflaging and identity. We found that higher autistic identity related to more disclosure, and this then linked to less camouflaging, that is, strong autistic identity can relate to less camouflaging when someone is more openly autistic. We also found that ignoring disclosure, autistic identity directly influenced camouflaging in the opposite way, that is, higher autistic identity contributed to camouflaging if we do not take disclosure into account. This is known as "competitive mediation" and suggests a complex picture when it comes to identity, disclosure, and camouflaging. As far as we know, no one has looked at these relationships before. We therefore add to camouflaging research and show that camouflaging might be reduced if autistic people identify strongly they are able to be openly autistic. Participants were recruited online, which means the sample may be biased, and the findings will not apply to all autistic people. We measured disclosure using one question, which could be a problem because individuals might have interpreted the question in different ways. The "competitive mediation" suggests that there are other variables impacting on relationship between identity and camouflaging, which we did not capture. This study indicates that strong autistic identity being openly autistic could reduce camouflaging, which we know to have negative effects on mental health. However, to enable disclosure, these findings demonstrate the need for safe spaces where autistic people can explore their identity and be openly autistic, without fear of discrimination.

摘要

背景

伪装涉及隐藏自闭症身份,例如在社交场合中采用非自闭症行为。目前,我们对自闭症身份与伪装之间的关系了解甚少。此外,其他变量可能会调节伪装与身份之间的关系,本研究探讨了自我表露(公开自己是自闭症患者)是否可能调节这种关系。我们预测,当一个人对自己是自闭症患者更加开放时,较少的伪装行为会与更高的自闭症身份相关联。

方法

180名自闭症成年人(52%为女性,42%为男性,5%为其他性别认同,1%选择不透露)参与了这项研究。他们完成了一项在线调查,其中包括伪装、自闭症身份和自闭症状态自我表露的测量。

结果

我们发现了一个显著的中介效应,即自闭症身份通过自我表露对伪装产生间接的负面影响。换句话说,更高的自闭症身份与更多的自我表露相关联,而这反过来又与更少的伪装行为相关联。然而,有证据表明存在竞争性中介效应,即直接效应(忽略自我表露时身份与伪装之间的关系)是显著的,更高的自闭症身份直接与伪装相关联。

结论

最初的假设得到了证实,更高的自闭症身份通过自我表露与更少的伪装相关联。这一发现表明,当自闭症认同感较高且某人已向他人公开自己是自闭症患者时,伪装行为会减少。然而,身份与伪装之间的直接效应表明,对于那些强烈认同自己是自闭症患者但仍继续伪装的人来说,可能存在冲突。其他变量可能在身份与伪装之间的关系中起作用,例如对歧视的恐惧、自我意识、诊断时间、年龄、种族或性别。研究结果表明了安全无歧视环境的重要性,在这样的环境中,个体可以自我表露并表达他们的自闭症身份,这反过来可能会减少伪装行为。

通俗总结

伪装涉及隐藏或掩盖自己是自闭症患者的身份,或者使用策略让自己看起来像非自闭症患者。过去的研究发现,伪装与较差的心理健康状况有关。鉴于此,我们必须了解减少伪装的方法。在这项研究中,我们研究了伪装、自闭症身份(与自闭症群体的归属感)和自我表露(公开自己是自闭症患者)之间的联系。我们从其他研究中了解到,强烈认同自闭症群体可能有助于预防心理健康问题,所以我们想探索自闭症身份在伪装中可能扮演的角色。目的是了解伪装、自闭症身份和自我表露之间的关系。我们考虑了自我表露,因为某人可能有强烈的自闭症身份认同感,但可能不会向他人公开这一点。我们测试了这样一种观点,即具有强烈自闭症身份认同感的人可能会更公开地表明自己是自闭症患者,这进而会产生连锁反应,与更少的伪装行为相关联。180名自闭症成年人完成了一项在线调查。他们回答了关于伪装、自闭症身份和自我表露的问题。他们还回答了关于自己是谁(如年龄、性别)以及自闭症特征的问题。我们使用一种名为“中介分析”的方法分析了每个人的答案。这种分析使我们能够测试自我表露如何影响伪装与身份之间的任何关联。我们发现,更高的自闭症身份与更多的自我表露相关联,而这又与更少的伪装行为相关联,也就是说,当某人更公开地表明自己是自闭症患者时,强烈的自闭症身份认同感可能与更少的伪装行为相关联。我们还发现,忽略自我表露时,自闭症身份直接以相反的方式影响伪装行为,也就是说,如果我们不考虑自我表露,更高的自闭症身份会导致更多的伪装行为。这被称为“竞争性中介效应”,表明在身份、自我表露和伪装方面存在复杂的情况。据我们所知,之前没有人研究过这些关系。因此,我们为伪装研究增添了内容,并表明如果自闭症患者强烈认同自己并能够公开表明自己是自闭症患者,伪装行为可能会减少。参与者是通过网络招募的,这意味着样本可能存在偏差,研究结果不适用于所有自闭症患者。我们使用一个问题来测量自我表露,这可能存在问题,因为个体可能对该问题有不同的理解。“竞争性中介效应”表明还有其他变量影响身份与伪装之间的关系,而我们并未捕捉到这些变量。这项研究表明,强烈的自闭症身份认同感和公开自己是自闭症患者可能会减少伪装行为,我们知道伪装行为对心理健康有负面影响。然而,为了实现自我表露,这些研究结果表明需要有安全的空间,让自闭症患者能够探索自己的身份并公开表明自己是自闭症患者,而不必担心受到歧视。

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